Advice please: support available at CKD stage 3A?

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Spiral64
Posts: 2
Joined: Thu Aug 01, 2019 12:44 pm

Advice please: support available at CKD stage 3A?

Post by Spiral64 »

Hi Everyone

I have just joined the forum. I was recently diagnosed with Stage 3A CKD and I'm a bit baffled! The GP was very dismissive of it eg "Everyone's kidney function gets poor when you age" (I'm 55). I was told not to worry as my blood pressure is fine. So I came out feeling that I had been told something quite serious but also not to really worry about it as it was nothing. I went with the idea it was nothing (as I guess it's less scary) but I am getting regular discomfort on my left side and can't sit comfortably, I also feel constantly exhausted (which is why I had the blood test to begin with) and I find it really hard to focus on anything. I'm also quite low in mood - but largely because I'm so lacking in energy. I've just joined this forum as I was looking for advice as I'm sitting at work barely able to keep my eyes open and not achieving anything...

Sorry to whinge but I feel I need to find out more about what I have and what to do and it seems clear that the GP isn't too interested. Is it possible to get a referral for any kind of specialist and if so how do you go about it? I live in London if that makes a difference to what's available. And how do you know if your symptoms are related to CKD or something else? Guess the answer to that is you don't?!?

Any advice would be really appreciated. I'm sorry if what I'm saying is answered in other threads. I have just joined.

Thanks so much for reading this.

Spiral64
wagolynn
Posts: 1310
Joined: Thu May 23, 2013 2:49 pm

Re: Advice please: support available at CKD stage 3A?

Post by wagolynn »

Hi Spiral64,
Perhaps your GP is trying to stop you worrying so he has downplayed your condition.
In a sense the GP is right worrying doe's not help anything.
Is the GP aware of all your symptoms, and have you been referred to a consultant?

Your symptoms are right for someone with kidney failure, pain suggests an infection, has this been investigated?
The symptoms magnitude varies from person to person.

Perhaps if I point you to the Contents page of this website you can read up on the topic http://www.kidneypatientguide.org.uk/contents.php

If this doe's not clear things a bit for you come back, I am sure someone will be able to answer your questions.

Best wishes.
Spiral64
Posts: 2
Joined: Thu Aug 01, 2019 12:44 pm

Re: Advice please: support available at CKD stage 3A?

Post by Spiral64 »

Thank you Wagolyn. I will read the link :)
Kimsalzwedel
Posts: 2
Joined: Thu Aug 22, 2019 5:00 pm

Re: Advice please: support available at CKD stage 3A?

Post by Kimsalzwedel »

I’m in same place as you. I’m 54 and diagnosed with CKD stage 3b. My GP also has kinda of just said “it happens when you get older”. ?? I’m so curious and worried at same time. So I totally can feel your pain hopefully we find some answers with this web site. Thanks for listening.
salts99
Posts: 2
Joined: Wed Jan 13, 2021 12:23 am

Re: Advice please: support available at CKD stage 3A?

Post by salts99 »

Hi,

Did you get a diagnosis from a specialist or was it done by your GP from blood tests (eGFR). I've had one test of 53 but doc has asked for another test. I'm very frustrated because my doc wont speak to me till after 2nd test but sent me a letter about CKD. Some of my liver ft's were also abnormal.
wagolynn
Posts: 1310
Joined: Thu May 23, 2013 2:49 pm

Re: Advice please: support available at CKD stage 3A?

Post by wagolynn »

Hi,
Start by having a look at this sites home page there is lots of good reliable information there.
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