Kidney Patient Guide

Hi Richard.. as a follow up from myself.. just wanted to thank you for me deciding to talk to my TX Prof about removing my fistula.. I was getting tired and breathless very easily.. just walking upstairs!! mentioned it to my Tx Prof and the thinking about having my fistula removed.. after an appoint...

a member who no longer posts on here caught covid earlier this year..
was in hospital to help with her breathing but is now back home with her husband and young son happily recovered from it..

thanks Thumps..
will be useful when I get the call

blimey Chris that's fantastic!!.. long may it continue too!!
I'm only 18 1/2 yrs post transplant.. but hope mine lasts as long and as well as yours!!
I average out around 45 egfr and creatinine 150 which for height and weight my Prof is happy with..

no.. not yet..
but I know of other Tx patients that have..

really sorry to read your post.. it's easy to forget that as we all plod along we get into a rut.. and these last few years we have been forced into a rut not of our own choice or making.. I've found I go out less and not do the things I used to.. it's hard to get up and out of that rut if we are st...

that's great..
let us know the progress
had mine got around the same length of time..
my tx was 18yrs ago..
my fistula is still pumping away and is quite large..
don't want to tempt fate by having it tied off..
but don't want a quite noticeable lump I'm my upper left arm either..

Hi Harry it hits you hard.. a time like this and it's difficult to see anything positive but one thing you will find reading past posts is NEVER let dialysis stop you doing what you want read way back and read others experiences there are many ... it will help you decide what dialysis will fit in wi...

am sure everything will be ok..
but do let us know you're doing OK Wagolynn

Yes.. got an email yesterday..
though I consider myself very lucky compared to many..
my company sent me home to work mid march..
am still working from home along with the other half..
we both work for the same place..
and they sent her home at the same time because of me..

couldn't agree more..
it reminds me of how helpful people were when the Board started..

Hi Dave ...
no sorry ...
had my fistula made under full anaesthetic ...
but did have it reduced quite some years back as I was having 'steal issues' with it ...
that was under a local ...

Hi Morzov ... no problem ...you made yourself perfectly clear ... Tac being replaced by MMF my Prof was more concerned about me being on a steroid for so long ... for now that's more important I assume ... I believe now it's normal to start a steroid free regime with their new Tx I think either way ...

Hi Morzov ... apologies for not replying sooner ... sounds like we are in a similar situation with changing to MMF I'm UK based ... 16 1/2yrs Tx and because of my size (6'4" and 100-ish kg) my creatinine sits around 130-150 I used to take 2.5mg of Tac (I take the once a day slow release Advagra...

Hi Allen..
glad you've had it done..
let's hope it does the job!!