Search found 1067 matches

by Thumps
Mon Apr 20, 2020 4:53 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

I never got my letter so I spoke to my GP - they are sending me one anyway. We had a good old rant about the shockingly shit job the Govt has been doing, which was oddly bonding :mrgreen:
by Thumps
Mon Apr 20, 2020 4:52 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

Only if you're stage 4 or 5, it would appear.

https://www.kidneycareuk.org/news-and-c ... us-advice/
by Thumps
Tue Mar 31, 2020 4:07 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

Bit surprised your renal unit haven't contacted you. It was them that got in touch with me first. There might be info on your hospital page? Is there an email address for your outpatient office?

Good luck. x
by Thumps
Mon Mar 30, 2020 4:30 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

I didn't get a letter, only a text message. But it definitely confirmed that I was in the shielding group (12 years tx)
by Thumps
Tue Mar 17, 2020 10:59 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

Extra advice from the kidney charities too...

https://www.kidneycareuk.org/news-and-c ... us-advice/
by Thumps
Tue Mar 17, 2020 10:15 am
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

The new guidance can be found here: https://www.gov.uk/government/publications/covid-19-guidance-on-social-distancing-and-for-vulnerable-people/guidance-on-social-distancing-for-everyone-in-the-uk-and-protecting-older-people-and-vulnerable-adults I would be interested to hear what folks get from the...
by Thumps
Fri Mar 13, 2020 1:18 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

It's ok, I found it - you were right.

Nothing from the unit that differs from general advice and tbh I think that makes sense - it'll only become an issue if we get infected and need treatment.
by Thumps
Mon Mar 02, 2020 2:28 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

Indeed, the literature I've been reading indicates that alcohol gel is effective against this virus. Bad for your hands overall, though. Interesting about the case, have you got a link to where you saw that? I had a severe bout of tonsilitis last summer where the docs made me stop my immunosuppressi...
by Thumps
Wed Feb 26, 2020 12:26 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 45377

Re: Coronavirus

I would guess the reason we've had nothing specific is because the advice is the same as it is for the flu virus or anything else of that type - practise good hygiene, keep away from sick people, see your doctor quickly if you get ill.
by Thumps
Tue Feb 18, 2020 1:44 pm
Forum: The KPG Forum
Topic: First post as I'm little bit worried
Replies: 3
Views: 5194

Re: First post as I'm little bit worried

Hi there First of all, welcome! I can't comment on the diabetes but I can tell you that you're doing all the right things in losing weight and reducing blood pressure. I can also say that GFR movement is rarely linear, and a drop from 38 to 36 is not a huge one - in fact from one blood test to the n...
by Thumps
Sat Jan 18, 2020 6:07 pm
Forum: The KPG Forum
Topic: My recent TX experience
Replies: 4
Views: 8584

Re: My recent TX experience

HUrrah! hope it wakes up soon :)
by Thumps
Thu Dec 26, 2019 12:31 am
Forum: The KPG Forum
Topic: Kidney Patient Guide website updates
Replies: 4
Views: 10375

Re: Kidney Patient Guide website updates

That looks fine to me :)
by Thumps
Mon Nov 11, 2019 2:45 pm
Forum: The KPG Forum
Topic: Fear of tx failure?
Replies: 9
Views: 19421

Re: Fear of tx failure?

HI there I don't think it's alarmist at all, just your own personal experience. Thank you for sharing it. I'm glad the chemo is going well, wish you all the best. I am also a 1/6, which at the time they explained away saying that the drugs are so much better so it would be fine, and it has been - I'...
by Thumps
Sun Aug 04, 2019 6:54 pm
Forum: The KPG Forum
Topic: Muscle pain/joint pain
Replies: 33
Views: 111345

Re: Muscle pain/joint pain

The thing is, just because we have kidney disease it doesn't mean it's the only cause of anything. Your GP is fobbing you off. There must be other possibilities. Time to tell them to look past the illness and treat the whole patient (in a nice way of course)!
Good luck
by Thumps
Fri Jul 12, 2019 12:47 pm
Forum: The KPG Forum
Topic: Fear of tx failure?
Replies: 9
Views: 19421

Re: Fear of tx failure?

It’s obviously all very encouraging but in some ways it’s a bit weird as you kinda never know .. and so long term decision making is kinda reduced to ‘do it now’ (just in case). Yes! Exactly this. I had a massive party to celebrate the 10 year anniversary in the end, and raised about a grand in cas...