Kidney Patient Guide

Congratulations on your new transplant. I hope it wakes up and starts working well soon.

Let us know how you get on.

Sue

A slightly belated HAPPY NEW YEAR to all.

A wish to all that our renal disease doesn’t hold us back and a wish that for all of us with hereditary renal disease, it isn’t passed to our loved ones.

Sue x

Hi Jooles, Lovely to hear from you again. I hope all is going well with your transplant. I followed your trials and tribulations 5 years ago and received my transplant about 6 months after you. I guess I’m a bit late in replying to your post? I would guess that they would try to treat your brothers ...

Hi John, Delighted your kidney disease has been identified. On reading about your condition I suspect I have ADTKD -MUC1. I was wondering how you got your diagnosis? Who is the top guy or someone who is doing research in this country? I’m happy to give blood and a family history for research. I gave...

Happy Christmas to all.
I hope 2019 turns out to be a good year for everyone.

Stephen, Don’t worry. I live an hour away from my transplant centre also. I wanted to visit family for Christmas who live a further 3 + hours away so it would be a minimum of 4 hours away (assuming holiday traffic was light!!!). The transplant nurses said it was no problem as long as I was willing t...

Adoport is not a generic. It is another branded tacrolimus, just made by a different company. Your transplant nurses are correct tacrolimus should not be prescribed generically as you could be given different brands with their different quirks each time you cash a prescription. My unit swapped every...

John,

I’ve been locked out of my forum account. No idea why so I’ve had to re register.
Any chance you could resend the PM to this new account.

Thanks
Sue