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by Thumps
Mon Sep 29, 2008 9:02 am
Forum: The KPG Forum
Topic: Loss of appetite with declining renal function
Replies: 13
Views: 8614

I've clearly been very fortunate - no major loss of appetite or nausea to speak of, I haven't shrunk and I haven't been restricted on any foods so far. Got clinic today so am a bit apprehensive about bloods as per usual.
by Thumps
Sat Sep 27, 2008 10:57 am
Forum: The KPG Forum
Topic: Top Tips for those going in to have a tx
Replies: 62
Views: 488337

Can we make this a sticky thread? It's so useful! :D
by Thumps
Thu Sep 18, 2008 6:56 pm
Forum: The KPG Forum
Topic: Living Donor - Recipient processes
Replies: 8
Views: 5550

Cheers all :)

Guess I'm just a bit twitchy and feel like I've not really had to "go through" anything compared to my potential donor. That sort of neglects the fact that I'm constantly in and out of hospitals and GP surgeries having check ups doesn't it!

Thanks again x
by Thumps
Thu Sep 18, 2008 3:35 pm
Forum: The KPG Forum
Topic: Living Donor - Recipient processes
Replies: 8
Views: 5550

Living Donor - Recipient processes

Hey :D Anyone know of any resources that I can look at to see what the process is for recipients in a Living Donor scenario? There seems to be quite a bit of info out there for potential donors, and for cadaveric donor recipients, but not much for people who may get a living donor tx, which seems od...
by Thumps
Mon Sep 15, 2008 11:33 am
Forum: The KPG Forum
Topic: Question about my Creatinine and eGFR
Replies: 14
Views: 38457

Can you not ask for some help in the meantime? Three months seems an awful long time to wait! I was started on iron infusions in January when my Cret. was only about 230 (eGFR was 18 then i think) because I felt so tired and awful and it did help a bit, and then last month I was put on EPO to try an...
by Thumps
Mon Sep 15, 2008 10:57 am
Forum: The KPG Forum
Topic: Question about my Creatinine and eGFR
Replies: 14
Views: 38457

can anyone guess how long I have left before dialysis? Short answer is no, I'm afraid. Much as we'd all like to plan for that day, we simply don't know and there's no magic formula for working out the date either. I'd say just get on with life as if you don't need to worry about it and keep healthy...
by Thumps
Fri Sep 12, 2008 11:02 pm
Forum: The KPG Forum
Topic: Completely confused by antibodies with transplants
Replies: 22
Views: 16458

Yeah, reckon that's a good idea - I've never even had antibodies mentioned to me with my donor, I've asked about it and was basically told it's not a problem as long as the blood types match, so I stopped asking. I've no clue about HLA matching and all that stuff.
by Thumps
Fri Sep 12, 2008 4:32 pm
Forum: The KPG Forum
Topic: fluctuating blood pressure
Replies: 8
Views: 6990

Agree - mine can vary enormously depending on activity, time of day and how long I've been sat waiting in clinic ;) My doc recommended I get a home BP monitor and check it once a week or so, and gave me a target number (120/75) which I'm happy to say I've been close to for quite a while now. Checkin...
by Thumps
Tue Sep 09, 2008 5:43 pm
Forum: The KPG Forum
Topic: Date for kidney transplant
Replies: 9
Views: 7360

Indeed, good luck to you both!

I've got my next neph. appointment in two weeks, so hopefully I'll know more about what's happening then as my donor's results should all be in by then.

x
by Thumps
Thu Sep 04, 2008 1:56 pm
Forum: The KPG Forum
Topic: Organic Food..
Replies: 12
Views: 10729

Sounds all a bit new age to me.... :? I reckon the advice is the same as always - eat a healthy, balanced diet, within the confines of whatever restrictions your doctors tell you. I doubt it matters much if your fruit n veg was mass produced or organic; there's precious little (if any) evidence that...
by Thumps
Thu Sep 04, 2008 1:42 pm
Forum: The KPG Forum
Topic: Fistula and pre emptive transplant
Replies: 3
Views: 3629

Hey Aileen I haven't had the fistula op yet - I'm going in to see the surgeon to discuss it in two week's time. I was a bit surprised too, to be honest. My neph. suggested we consider it at my last appointment. My eGFR has been on a gentle downward trend for a while (from 20 in January to 14 last mo...
by Thumps
Thu Sep 04, 2008 9:43 am
Forum: The KPG Forum
Topic: Feeling panicky/bemused/irritated/blah
Replies: 5
Views: 5393

Wow - I agree that all sounds a bit sudden! 3 months between appointments does seem quite a long time. As you know I'm at a similar stage to you, and I've been going back to the clinic every six weeks recently for bloods and to see my neph. I'm sure Helen's right in that they do all talk to each oth...
by Thumps
Thu Sep 04, 2008 9:33 am
Forum: The KPG Forum
Topic: Presumed consent
Replies: 15
Views: 9585

Agree entirely with what you've said, Andy. I've always thought the one thing that could and should be changed is the issue of family involvement. If the person has signed the National Organ Donor Register, then I don't understand why the relatives still get asked permission for the donation to take...
by Thumps
Fri Aug 29, 2008 9:54 am
Forum: The KPG Forum
Topic: Swollen ankles
Replies: 9
Views: 6805

Sorry to hear your doctor wasn't very helpful on the BP drugs front - I had exactly the same experience on Amlodipine (it manifested most while I was at the Glastonbury Festival, which was nice!), terribly swollen ankles. I took myself off the drug and went back to my GP. After trying various other ...
by Thumps
Wed Aug 27, 2008 9:56 am
Forum: The KPG Forum
Topic: How Time Flies
Replies: 10
Views: 6087

Wow, best wishes, hope it's all going well!