Kidney Patient Guide

I hope your appointment went well.

There are many support groups including the https://www.kidneycareuk.org and the NKF which includes the YoungNKF.. which is on Facebook as well

https://www.kidney.org.uk

Good luck

J

Good idea in Canada..

https://networks.sustainablehealthcare. ... ate-change

hello,this is my first post and I have just had a kidney transplant,i am having doctors appointments but I am confused about physically what I am allowed to do(ie lifting,bending etc) I do not want to undo what the doctors have done,perhaps somebody can suggest some sort of paperwork I can download...

Hi Duker.. Sounds like you do need some external help. Dialysis is shit.. I'm back on dialysis after a failed transplant in 2005.. I'm not even going to say there are people better/worse off than you cos that's no help, a fact, but no help. Have you tried counselling.. KidneyCareUK offers a phone co...

There's some veggie's and even vegans on dialysis. Both work well if you have good clearance and dialyse frequently. Well dialysis works well if you have good clearance:) NONE of the books below claim to 'cure' kidney disease, and most have a substantial area/list of recipes and tips for vegetarians...

@elizzynew412

I'm pretty sure theres some folks on the Facebook groups (kidneycareUK, etc) that are under Wolverhampton. Its not an area I'm that familiar with however:)

There are a few products that are a bit like 'support sleeves' for fistulas. Mostly shipped from the USA I think.. I've never used one myself but they seem to add some protection.

https://www.etsy.com/uk/listing/2442315 ... ver-sleeve

There should be some people:) Generally heavy lifting really isn't advised, and basically at your own discretion when the fistula has fully matured (about 6 months, in my opinion anyway). I can lift a 5 litre can of dialysate, but not repeatedly and nor carry for a long distance.. Used to lug stock ...

Just in case you've missed this hilarious parody of the Abba number!

https://www.facebook.com/flametreeyogas ... 048450509/

More from a clinical approach but useful, especially as most hospitals seem to 'appear' to make up their own rules as they go along!

Thanks for sharing:)

Will take a looksee

To some degree 'Global Dialysis' allows for reviews of dialysis centres in the UK and globally..

http://www.globaldialysis.com/for-dialy ... ntres.html



Thats all I can think of, but not UK specific review sites:

I had a parathroidectomy many moons ago. My calcium was unstable and at dangerous levels. I've not had major consequences since and bone density and Calcium etc is monitored regularly...

Why does it matter if your phosphate is high? I am just learning about this stuff with my dad, who is about to start dialysis. His renal specialist nurse said his phosphates were over 1000 in his urine (edit. I probably mean blood!!). So we went away and looked up phosphates in food, and decided he...

Its mostly UK users in this group so you may not get many replies..

Possibly try one of the US forums..

I haven't a clue where any of those places are:D