Search found 23 matches
- Thu Mar 08, 2018 2:00 am
- Forum: The KPG Forum
- Topic: Feeling Ill
- Replies: 8
- Views: 20641
Re: Feeling Ill
My consultant is reluctant to put me on EPO, he says my anaemia is not bad enough to justify it, so will see where this goes. my iron and B12 count is good but if my body is not producing enough natural EPO then I suppose I cannot use these stores.
- Mon Dec 25, 2017 8:13 am
- Forum: The KPG Forum
- Topic: Feeling Ill
- Replies: 8
- Views: 20641
Re: Feeling Ill
Thank you , I have an appointment for my anaemia in January, I suppose I will start on EPO.
- Sun Dec 24, 2017 7:51 am
- Forum: The KPG Forum
- Topic: Feeling Ill
- Replies: 8
- Views: 20641
Feeling Ill
Ladies and Gents At what point did you start to feel ill? My GFR has fallen to 26, until recently I have felt no ill effects, now I am getting headaches, a metallic taste in my mouth, i am low on energy and my blood is showing as slightly anaemic, Is this normal and in line with what everyone else h...
- Thu Oct 26, 2017 9:32 pm
- Forum: The KPG Forum
- Topic: suggestion... how about introducing ourselves??
- Replies: 946
- Views: 2275076
Re: suggestion... how about introducing ourselves??
Hi my name is John, I am 51 and live in Worcestershire UK. I was diagnosed with an unidentified CKD 2 years ago following pre op checks for a minor op. My father and half of his siblings (plus his mother) all died from conditions related to CKD. I hope to find other people with the same condition, m...
- Thu Oct 26, 2017 9:17 pm
- Forum: The KPG Forum
- Topic: Unidentified Disease
- Replies: 13
- Views: 48126
Re: Unidentified Disease
Thank you Sue, my grandmother died in 1938, not much available in those days. We are about 50/50 too. My father was late diagnosed in 1992 and died from heart damage caused by a high Potassium level.
Hope we can learn more over the next ten years
Hope we can learn more over the next ten years
- Thu Oct 26, 2017 9:13 pm
- Forum: The KPG Forum
- Topic: Unidentified Disease
- Replies: 13
- Views: 48126
Re: Unidentified Disease
Thank you JMan, I will give that a try
- Wed Oct 25, 2017 11:05 am
- Forum: The KPG Forum
- Topic: Itching
- Replies: 4
- Views: 13323
Re: Itching
I get itchy skin too, not sure if it is related to the CKD, I find low PH body washes help, such as Nivea Energy.
- Wed Oct 25, 2017 11:03 am
- Forum: The KPG Forum
- Topic: Unidentified Disease
- Replies: 13
- Views: 48126
Unidentified Disease
Hi my name is John, I suffer from an unidentifed CKD similar to Alports, i inherited it from my father, he, his mother and half of his siblings have died from complications related to the same disease. It shows itself in middle age and results in scarred kidney tissue and a slow decline in GFR; unus...