Search found 1113 matches

by Thumps
Wed May 03, 2023 5:37 pm
Forum: The KPG Forum
Topic: Spring Boosters
Replies: 3
Views: 9182

Re: Spring Boosters

I just told them I'd had a transplant and they believed me :lol:
by Thumps
Sun Apr 16, 2023 9:26 pm
Forum: The KPG Forum
Topic: "Patients Know Best"
Replies: 8
Views: 16395

Re: "Patients Know Best"

Glad it's not just me who is so unimpressed! Wonder how much kickback the UKKA could be getting??
by Thumps
Sun Apr 16, 2023 9:06 pm
Forum: The KPG Forum
Topic: Spring Boosters
Replies: 3
Views: 9182

Re: Spring Boosters

I've got mine booked on the 24th
by Thumps
Fri Apr 14, 2023 1:46 pm
Forum: The KPG Forum
Topic: "Patients Know Best"
Replies: 8
Views: 16395

"Patients Know Best"

How are other people finding this forced transition away from PatientView? I'm so disappointed, so far PKB and the UK KIdney Association have done (imho) a really crappy job of providing a service to us kidney patients when PatientView was so good!
by Thumps
Mon Apr 10, 2023 5:01 pm
Forum: The KPG Forum
Topic: New to forum
Replies: 12
Views: 12578

Re: New to forum

It's entirely possible to live a full life with that kind of function level, but it's certainly good to know why it's changing. Depending pn your age, renal function does decrease as we get older.
by Thumps
Mon Apr 10, 2023 5:00 pm
Forum: The KPG Forum
Topic: End of mask wearing
Replies: 4
Views: 6519

Re: End of mask wearing

I have my booster jab in two weeks' time. Folks in my renal clinic wear masks as required by the staff but when I was in as a surgical inpatient last week they didn't until I got into theatre.
by Thumps
Sun Mar 05, 2023 8:22 pm
Forum: The KPG Forum
Topic: New to forum
Replies: 12
Views: 12578

Re: New to forum

Hi there! There's not a huge amount of traffic on the forum these days so I'm glad you found us. First thing - try not to worry too much about a single result. It's all about a trend and direction, not the number. Also the reason for the eGFR being what it is, is very important. For example, my eGFR...
by Thumps
Mon Jan 30, 2023 4:53 pm
Forum: The KPG Forum
Topic: A question I never thought I'd ask but.......
Replies: 13
Views: 19365

Re: A question I never thought I'd ask but.......

There's nothing wrong with it staying up as a searchable archive for folks that find it. If the cost of keeping it up is low I'd like to do that.

In terms of attracting new participants, I think that really depends on whether the Guide in general is going to be maintained as a resource?
by Thumps
Mon Dec 19, 2022 10:08 pm
Forum: The KPG Forum
Topic: A question I never thought I'd ask but.......
Replies: 13
Views: 19365

Re: A question I never thought I'd ask but.......

Heh to be honest this is by far the longest surviving PHP Bulletin Board I've *ever* used and I've been admins for quite a few. I think Covid has had a significant impact on most online fora and social media groups as far as I can tell in my work. Online behaviours have changed. I guess the question...
by Thumps
Mon Nov 21, 2022 12:15 am
Forum: The KPG Forum
Topic: A question I never thought I'd ask but.......
Replies: 13
Views: 19365

Re: A question I never thought I'd ask but.......

I don't think it's entirely dead, but Covid changed so many things. It's probably harder to find for n00bs than it used to be through search engines, too. I wonder ho wmuch traffic the KPG site itself gets these days?
by Thumps
Sun Jul 31, 2022 10:56 pm
Forum: The KPG Forum
Topic: PKD patients - experience of Polycystic Liver?
Replies: 1
Views: 3913

Re: PKD patients - experience of Polycystic Liver?

Really? No-one?? :(
by Thumps
Wed Jul 06, 2022 12:53 pm
Forum: The KPG Forum
Topic: PKD patients - experience of Polycystic Liver?
Replies: 1
Views: 3913

PKD patients - experience of Polycystic Liver?

Hey folks - as above, I'm curious for PKD folks what your liver experiences have been? I actually had to have surgery on a liver cyst before I'd even got to transplant, but it's not been front of mind for quite a few years. Now though, my liver is completely covered and has massively increased in si...
by Thumps
Mon Jun 13, 2022 10:08 am
Forum: The KPG Forum
Topic: Live Transplant - what to expect?
Replies: 7
Views: 6836

Re: Live Transplant - what to expect?

One thing I'd say which might be controversial - I did not feel 'better' for the first few weeks at all. In fact I felt worse! I'd been coping on a eGFR of 10-12 for a few months before my pre-emptive living donor transplant from a friend, so had no dialysis or anything. As such, I'd had no restrict...
by Thumps
Mon Jun 13, 2022 9:30 am
Forum: The KPG Forum
Topic: Live Transplant - what to expect?
Replies: 7
Views: 6836

Re: Live Transplant - what to expect?

Hello! I had my live donor tx at Guys in 2008 and they were fantastic throughout. There's a checklist somewhere of things to take for while you're in hospital on this forum, worth checking out! I definitely recommend earplugs and an eye mask for when you want to sleep during the day time (and you pr...
by Thumps
Tue Apr 05, 2022 5:58 pm
Forum: The KPG Forum
Topic: My Covid experience…so far
Replies: 5
Views: 7362

Re: My Covid experience…so far

The doctors I spoke to were confident that there's no impact on kidney function identified thus far. My blood pressure was pretty high before they discharged me but it has settled back down a couple of days later. My check up isn't for another few weeks, do keep us posted!