Search found 1367 matches

by wagolynn
Mon Jul 29, 2013 3:53 pm
Forum: The KPG Forum
Topic: Hello again...
Replies: 5
Views: 7705

Re: Hello again...

I cannot remember if I mentioned the NKF web site to you, I think they have a good description of PKD and its effects. Tiredness and sickness are certainly recognised symptoms of kidney failure. As to the up-and -down function, I don’t think that would be described as typical of PKD, it usually show...
by wagolynn
Sat Jul 27, 2013 3:05 pm
Forum: The KPG Forum
Topic: Hello can anyone advise me pls ?
Replies: 6
Views: 10279

Re: Hello can anyone advise me pls ?

Hello AmandaClair, sounds as though you are having a miserable time. From your description, I think you are having kidney problems; the backed-up urine will cause, in the longer term, irreparable damage to your kidneys. I think you are feeling the early stages of this. I would insist on seeing a nep...
by wagolynn
Tue Jul 16, 2013 3:25 pm
Forum: The KPG Forum
Topic: Questions about dialysis options
Replies: 10
Views: 13073

Re: Questions about dialysis options

PD and space – if the volume of dialysis fluid is too low there is no hope of PD working. Large kidneys will occupy the fluid space (as in my case). Fitting PD catheter – some surgeons prefer to use a full anaesthetics one reason is repairs can be made to any hernias found at the time. The PD cathet...
by wagolynn
Mon Jul 15, 2013 2:49 pm
Forum: The KPG Forum
Topic: Adult with Prune Belly Syndrome
Replies: 4
Views: 9568

Re: Adult with Prune Belly Syndrome

Have you tried goggling, UK prune belly syndrome.
by wagolynn
Mon Jul 15, 2013 2:45 pm
Forum: The KPG Forum
Topic: Dialysing on another persons home machine?
Replies: 1
Views: 3432

Re: Dialysing on another persons home machine?

I do not see any problem in using someone else’s machine. If the blood circuit is replaced (the usual procedure) each use, and the machine does its normal heat disinfection cycle (for the dialysis circuit) with the recommended chemicals then it is sterile. This is the procedure in a dialysis unit, w...
by wagolynn
Sun Jul 14, 2013 3:01 pm
Forum: The KPG Forum
Topic: Adult with Prune Belly Syndrome
Replies: 4
Views: 9568

Re: Adult with Prune Belly Syndrome

Have you found this web site http://prunebelly.org/
by wagolynn
Fri Jul 12, 2013 4:46 pm
Forum: The KPG Forum
Topic: Hydration Testing
Replies: 6
Views: 8383

Re: Hydration Testing

As I understand it, the urine colour test is only applicable to fully functional kidneys. In dehydration the skin is less flexible (hence the pinch test, the skin is slow to recover to its normal position), the pulse is fast and weak. Other effects are dizziness/light headed and the patient may be l...
by wagolynn
Thu Jul 11, 2013 3:41 pm
Forum: The KPG Forum
Topic: Getting a fistula!!
Replies: 9
Views: 24828

Re: Getting a fistula!!

Just to add to the above, the ‘thrill’ is a buzzing feeling at or very near to the (new, made by the surgeon) junction between the artery and the vein. The operation is usually done with a local anaesthetic, can take up to 3 hrs but more usually 2 hrs, just boring laying there.
by wagolynn
Thu Jul 11, 2013 3:30 pm
Forum: The KPG Forum
Topic: Hydration Testing
Replies: 6
Views: 8383

Re: Body's water content

You may this of interest re-water; note the difference in the sexes.

http://www.edrep.org/pages/textbook/flu ... basics.php
by wagolynn
Wed Jul 10, 2013 2:36 pm
Forum: The KPG Forum
Topic: anyone else read this in news today?
Replies: 17
Views: 21260

Re: anyone else read this in news today?

I wonder, did any of us who have been through the transplant ‘discussion’ get the feeling that a transplant was being sold to you. Not so much by the surgeon but the Transplant Liaison nurse/manager (or whatever her title). At the other end of the spectrum, I have seen a transplant team pressuring A...
by wagolynn
Mon Jul 08, 2013 8:30 pm
Forum: The KPG Forum
Topic: kidney removal and subsequent inability to have PD
Replies: 7
Views: 10458

Re: kidney removal and subsequent inability to have PD

Unfortunately, PKD does not progress in a liner fashion, in terms of blister growth it can lay dormant for years then suddenly put in a spurt of growth. Also the effect on kidney function is erratic as what happens mostly, is internal blister cause pressure on the tubules causing them to collapse th...
by wagolynn
Mon Jul 08, 2013 8:06 pm
Forum: The KPG Forum
Topic: Dehydration
Replies: 4
Views: 6780

Re: Dehydration

Get some medical help on this now, ring your GP or consultant. Low BP on HD is a common problem but is usually corrected by taking a drink and, as you mention, reducing the rate/amount of water removed. The hot weather and the runs, both will make you lose water and will require an increase in intak...
by wagolynn
Sun Jul 07, 2013 9:02 pm
Forum: The KPG Forum
Topic: Push to see consultant
Replies: 14
Views: 21940

Re: Push to see consultant

Without knowing more about you, it is tricky making any further comment... Try reading the paragraph on this website about water intake. Should you decide to take some action while waiting for your appointment; you can monitor what you are doing by A] how your body feels/looks and B] weighing yourse...
by wagolynn
Fri Jul 05, 2013 5:19 pm
Forum: The KPG Forum
Topic: Hydronephrosis in one kidney.
Replies: 3
Views: 8582

Re: Hydronephrosis in one kidney.

Sounds like progress to me...
by wagolynn
Fri Jul 05, 2013 5:16 pm
Forum: The KPG Forum
Topic: Push to see consultant
Replies: 14
Views: 21940

Re: Push to see consultant

The water is a catch 22 situation, yes, more water may help to flush you out but without some medication to drive your kidneys you are more likely to retain the extra water with all the problems that go with that. Less water, I would not do that without medical advice it can be dangerous. If are goi...