Although I'm only four weeks in to the transplant journey, most of s in Clinic have these side effects which the team tell us will disappear as our dose reduces....
Good luck to you.
Jooles
Search found 246 matches
- Thu Apr 16, 2015 1:58 pm
- Forum: The KPG Forum
- Topic: Tacrolimus side effects returned
- Replies: 3
- Views: 14312
- Sun Apr 05, 2015 4:10 pm
- Forum: The KPG Forum
- Topic: London bridges walk 2015
- Replies: 8
- Views: 29053
Re: London bridges walk 2015
I'm signed up to do it with my husband and my school is fundraising with a non-uniform day. I just hope I'm up to it given my recent transplant.
Jooles
Jooles
- Sun Apr 05, 2015 4:03 pm
- Forum: The KPG Forum
- Topic: Transplant Complications
- Replies: 16
- Views: 50922
Re: Transplant Complications
Gosh Mandy. So sorry to hear all of this but how amazing you've come through the other side. I hope you're feeling good now and that function keeps increasing.
Jooles
Jooles
- Fri Apr 03, 2015 1:59 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88716
Re: An Update from Jooles
Thanks Amanda. Hope you are keeping well.
Jooles
Jooles
- Tue Mar 31, 2015 3:20 pm
- Forum: The KPG Forum
- Topic: Grey Transplant
- Replies: 14
- Views: 37853
Re: Grey Transplant
Thanks Sue. Your turn soon then!
Jooles
Jooles
- Tue Mar 31, 2015 3:18 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88716
Re: An Update from Jooles
Hi Mandy Thanks for your good wishes. It's early days and I'm finding the clinic visits nerve-wracking. Creatinine only came down by a couple of points yesterday and there's protein in my urine. The question is whether that is from my own kidneys or whether the FSGS is transferring to new kidney.. B...
- Sun Mar 29, 2015 10:02 am
- Forum: The KPG Forum
- Topic: Grey Transplant
- Replies: 14
- Views: 37853
Re: Grey Transplant
Hi Grey So pleased to read this post from you! I had a transplant last week and in the bed opposite me was an altruistic donor - a remarkable woman who literally walked in off the street and offered her kidney to someone. there was also someone who had gone through paired exchange too. It was the se...
- Sun Aug 24, 2014 1:34 pm
- Forum: The KPG Forum
- Topic: Staying Alive - book launch in aid of Kidney Research UK
- Replies: 14
- Views: 26415
Re: Staying Alive - book launch in aid of Kidney Research UK
Just bought it also for my Kindle. Looking forward to reading. Well done you!
- Tue Aug 19, 2014 12:42 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88716
Re: An Update from Jooles
Lovely to hear from you Dixie and Mandy!
- Sun Aug 17, 2014 7:24 pm
- Forum: The KPG Forum
- Topic: Dialysis in Paris - France
- Replies: 3
- Views: 9017
Re: Dialysis in Paris - France
No - but just had a very successful week I Italy. Are you referring to pd? Batters amazing in their support and delivery abroad. Good luck
Jooles
Jooles
- Sun Aug 17, 2014 7:20 pm
- Forum: The KPG Forum
- Topic: I hate Dialysis
- Replies: 29
- Views: 90584
Re: I hate Dialysis
Can't add anything of substance to the already amazing replies. Only empathy. Stick with it. It does get better with time - but there are always those really shite nights. This site is full of amazingly supportive people who actually feel the same.
Good luck mate!
Jooles
Good luck mate!
Jooles
- Sun Aug 17, 2014 7:15 pm
- Forum: The KPG Forum
- Topic: Dialysis
- Replies: 8
- Views: 15529
Re: Dialysis
Hi ken Welcome to the group. Sorry to hear you are feeling rubbish. It's often the way just before dialysis starts and in my experience, it's the thought. Of it which is worse. I started nearly a year ago at which point my egfr was 6%. But once I started, after a period of adjustment, I was back tea...
- Thu Aug 14, 2014 4:25 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88716
Re: An Update from Jooles
Do it Sue! It's so liberating to get away and 'hook up' somewhere else! If I'm only away for one night I tend to take manuals and the bag warmer and just do a bag early evening and again in the morning. For the time being that does me. If it's longer than one night then I don't skip and take the mac...
- Thu Aug 14, 2014 9:41 am
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88716
An Update from Jooles
Well, it's been a long time since I have posted (although I try to read posts regularly). I'm nearly approaching the one year mark of PD - results seem fairly stable so I guess it's doing its job. No developments on the transplant front. I haven't heard from the Living Donor Coordinator at all since...
- Thu Jun 12, 2014 6:54 pm
- Forum: The KPG Forum
- Topic: Anyone on home APD can advise
- Replies: 9
- Views: 13697
Re: Anyone on home APD can advise
Hi Ikea do a good range of what they term as Kitchen trolleys - have hooks on side to out bags and shelves to put a container to house drain bags, Even a drawer for clamps / shields and a wipe clean top try to connect. Many people use existing bedside tables etc. Baxters have been great. I order onl...