Search found 246 matches
- Sat Jun 27, 2015 5:12 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88715
Re: An Update from Jooles
Hey Sporti, that's awful. What week are you now? I'm week 14 - Prednisolone reduced now to 10mg but still on 10mg of Tacro (Advograf) and 500mg x twice daily of MMF (Cellcept). Did you have symptoms of diabetes? I hope it all reverts, as Grey says. I need tips from Tibbs about weight-loss! (never th...
- Thu Jun 25, 2015 8:21 am
- Forum: The KPG Forum
- Topic: Phone call
- Replies: 12
- Views: 35893
Re: Phone call
Hooray. Congratulations!
Jooles
Jooles
- Thu Jun 25, 2015 8:19 am
- Forum: The KPG Forum
- Topic: Prograf Tacrolimus
- Replies: 36
- Views: 94973
Re: Prograf Tacrolimus
Heck! I'm still on 10mg! Very shakey hands!
Jooles
Jooles
- Thu Jun 25, 2015 8:15 am
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88715
Re: An Update from Jooles
Hi Grey How is it all going post TX with you? I didn't have a stent or staples so can't comment although the men at clinic say it's generally fine. Tube removal was under general and was fine - recovery much like have by it put in although it was only two days, rather than two weeks without showers!...
- Mon Jun 08, 2015 8:17 pm
- Forum: The KPG Forum
- Topic: Stent removal
- Replies: 9
- Views: 25850
Re: Stent removal
I got lucky and had the surgeon who doesn't use stents'
- Mon Jun 08, 2015 8:15 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88715
Re: An Update from Jooles
Ooooh! I hope you're right Tibbs! It's getting worse for me! Eating so much - put on 7 kg and they can't reduce my steroids yet cause of tinkering with the mycophenolate. Clothes with waistbands are a no-go! Face is massive too! Stills, small price to pay really! Glad all is well in your world!
Jooles
Jooles
- Mon Jun 08, 2015 8:10 pm
- Forum: The KPG Forum
- Topic: Grey 3 weeks since transplant.....
- Replies: 9
- Views: 23961
Re: Grey 3 weeks since transplant.....
Hi Grey! I've been waiting for this post! Hooray! Well done! It's a new journey. Lots to get accustomed to. Readjustment etc. The cannulas were my main phobia too! I'm due to be discharged from Transplant Clnic back to consultant appointments on Thurs as I reach my 12 week mark. It's been a rocky jo...
- Wed Jun 03, 2015 7:39 pm
- Forum: The KPG Forum
- Topic: Grey's transplant 19th May scheduled.
- Replies: 26
- Views: 67871
Re: Grey's transplant 19th May scheduled.
Grey - how are you?
- Wed Jun 03, 2015 7:37 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88715
Re: An Update from Jooles
Hi Tibbs. What a roller-coaster it all is post Transplant! Meds are my problem. White blood cont so low that they've cut out mycophenolate completely. Steroids making me look like Michelin-man and restless sleep. Can't stop eating. Having been 5foot 9 and a size 6 for most of my life this is a sheer...
- Sun May 31, 2015 8:01 am
- Forum: The KPG Forum
- Topic: Post transplant shape
- Replies: 9
- Views: 25225
Re: Post transplant shape
Hi! An interesting question here. On my mind too! I'm 10 weeks post transplant and after initial bruising went down, felt fine size-wise.b in the last couple of weeks, I have bloated quite considerably in the face and my tummy has a distinct pregnant look such that I keep asking about whether I have...
- Tue May 19, 2015 6:38 pm
- Forum: The KPG Forum
- Topic: Grey's transplant 19th May scheduled.
- Replies: 26
- Views: 67871
Re: Grey's transplant 19th May scheduled.
'Been thinking of you today - sent you an early email. Kept fingers crossed ! Let us kbow how you got on!
Jooles
Jooles
- Fri May 15, 2015 9:43 pm
- Forum: The KPG Forum
- Topic: Grey's transplant 19th May scheduled.
- Replies: 26
- Views: 67871
Re: Grey's transplant 19th May scheduled.
Wow Sue. Amazing. Congratulations.
Grey - thinking of you. Have sent you a pm response to email! Good luck!
Jooles
Grey - thinking of you. Have sent you a pm response to email! Good luck!
Jooles
- Sun Apr 19, 2015 2:17 pm
- Forum: The KPG Forum
- Topic: Transplant Complications
- Replies: 16
- Views: 50922
Re: Transplant Complications
Here's to us both being back at the helm in Sept! Good luck Mandy.
Jooles
Jooles
- Sun Apr 19, 2015 2:14 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88715
Re: An Update from Jooles
Tibbs
it was Doxazosin. they replaced it with Bisoprolol and have told me to mention Doxazosin if asked whether I have allergies. I have since heard iother patients in clinic say they have had adverse reactions too.
Jooles
it was Doxazosin. they replaced it with Bisoprolol and have told me to mention Doxazosin if asked whether I have allergies. I have since heard iother patients in clinic say they have had adverse reactions too.
Jooles
- Thu Apr 16, 2015 2:05 pm
- Forum: The KPG Forum
- Topic: An Update from Jooles
- Replies: 31
- Views: 88715
Re: An Update from Jooles
Thanks Dixie! I keep saying those words to myself - still can't quite believe it. It's been a little rocky and last week I was re-admitted for a couple of days as my progress nose-dived and I became extremely breathless with heart palpitations. After lots of tests (lungs, heart, CMV), we now think i...