Kidney Patient Guide

Its gone all quiet so I suspect that she's had a verbal from the manager.
I was ready to take it to upper management and I think they know me well enough to try and avoid that.
Just glad to be back on Heparin

Well that was fun. A week of wondering round feeling like a cross between someone on sedatives, and someone whose drink had been spiked! New consultant asked why I was still on Heparin, I said, well I never swapped over to Tinze. I think I might have had it one or twice on holiday. (where the unit l...

Seems dialysis is starting to take its toll more and more. After dialysis anxiety and indecision kick in, especially if I have to go anywhere after treatment, which I avoid most days. And even more of a problem if I'm on my own. A session day without a 2 hour kip means a few days to recover. Next da...

I had my second IV iron three weeks ago, rather later than the 6 monthly they suggested and probably only then because I asked for it - suggesting my energy level was low and the monthly Aranesp 80 were not really helping. This time they did the IV a little slower the result in energy was less imme...

Hi Harry You can get a good idea on this website on the different types of dialysis See the animations https://www.kidneypatientguide.org.uk/treatment.html The link below is from an American site, but can help you get an idea of how to choose the dialysis you want to fit your life. Your consultant w...

I found this forum because I’m honestly scared. I just feel exhausted that I have to be going through this at 22. I don’t know where to go from here and what questions to ask my doctor. I have an anxiety of death and this has been such a weight on my shoulders. I need hope... help.. Nancy Please do...

Thanks. Well a blip in my Hb lately hasn't helped

last week in May I injured my hand, still not recovered. It sucks. Really bad sprain!

You'd need to put the water through an RO & filtration as well to get pure water. A water softener Reject water from a dialysis system is perfectly safe for drinking and irrigation. Maybe not feasible on a domestic scale, but in hospitals it makes sense. This is one reason why most heamodialysis...

Second Pfizer jab yesterday. Def affecting energy and mental health. I'm missing my other special 'non kidney friends', hating the garden,which usually gives me some pleasure, and generally feeling low. Don't you just love this fecking covid thing. Other news, the RSM webinars on Climate & Healt...

Thanks for that. Not going anywhere outside the country for a while.

But its good to get feedback:)

J

I'm 74 with high blood pressure, which is controlled with medication. Last year, my eGFR was 80, last week it was 58. So, I'm having further blood tests, urine test and, possibly, a scan as I have kidney stones. I understand that if CKD is confirmed, it will be my GP who will monitor me. As I under...

Dialysis in Holland?

Has anyone dialysed in the Netherlands or on German Dutch border?

It's been a long time since I've been back to my mums home country, and its something I'd like to do. Hell, with England as it is, I'd consider emigrating if I could! LOL

Hi @megs There's some excellent support on here, and from the main patient charities https://www.kidneycareuk.org/get-support/ https://www.kidney.org.uk You can try and manage your BP with diet (salt is a real factor) and general health. I know with diabetes its tricky, but it will make it better if...

I had mine Pfizer at the beginning of March. Bit weirder and more tired than normal for a week and a tender arm. Lynn had hers on the 25th went to bed for a long snooze after lunch the same day. That was the Astra Zeneca. Continuing o shield as per the most recent letters. The variants are strong (b...

Some units are doing them 'in unit' (friends have had them) Friend. Non renal has had one and had flu like symptoms and a sore arm for a couple of days. Probably something to do with Trust decisions more than anything. Thats the issue with semi privatisation. Worth looking at the Webinars/NKF/KCUK a...