Search found 131 matches

by Chris Wright
Wed Dec 13, 2017 9:23 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 50227

Re: Cycling and renal failure

p.s. to inspire you!

https://www.youtube.com/watch?v=HUWCeAzkc2Q

This was done with the help of a couple of my Club Mates and actually appeared on our Forum a couple of weeks before going public. It's epic!
by Chris Wright
Wed Dec 13, 2017 9:21 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 50227

Re: Cycling and renal failure

Ruth (i hope that's your real name), In helping, the problem i have, is that i am on very old medicines and i suspect you and most on this Forum are on very different meds to me. I'm on Prednisolone and azathiaprine, cyclosporine was just being discovered back in 1981, and whilst they have a lot of ...
by Chris Wright
Tue Dec 12, 2017 5:43 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 50227

Re: Cycling and renal failure

I've already experienced the dreaded 'bonk' recently for the first time and am very keen to avoid it again. It was interesting to see you said that I should stop every hour, that may be where I'm going wrong. I'm used to putting in 3hrs without stopping, but recently this has become far more diffic...
by Chris Wright
Sat Dec 02, 2017 11:31 am
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 50227

Re: Cycling and renal failure

Ok, a few answers, in no particular order: Rice cakes: https://pages.rapha.cc/team-sky/rice-cakes-a-recipe Chicken/cheese sandwiches, brown bread, with may be tomato slices to keep them moist. A couple of longer answers: "For drink she could use the old school approach of mixing a fruit juice (fruct...
by Chris Wright
Mon Nov 27, 2017 5:09 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 50227

Re: Cycling and renal failure

Ruth, I also have a tx and cycle. I used to help run Kingston Wheelers, a 600 member Club in SW London. I haven't heard of anything quite as tricky as your request but what i might do is post it on my Club's forum, if you don't mind. There is a huge knowledge base within the Club and someone might c...
by Chris Wright
Tue Oct 31, 2017 8:22 am
Forum: The KPG Forum
Topic: New Here, Chronic Pyelonephritis stage 1 or 2 CKD
Replies: 3
Views: 8334

Re: New Here, Chronic Glomerulonepphritis stage 1 or 2 CKD

Dick, I too had glomerulonephritis at an early age. I went into end stage renal failure when i was 22. I, and others, just made the best of life on dialysis. Six months later i was lucky enough to get a well functioning transplant. That was in 1981. Back then, the anti-rejection drugs, and knowledge...
by Chris Wright
Wed Aug 30, 2017 8:12 pm
Forum: The KPG Forum
Topic: Kidney transplant patients
Replies: 10
Views: 24252

Re: Kidney transplant patients

EF123,

Why not use your real name and state your background and purpose?

I assume you have nothing to hide.

I always use my real name as i don't. And i'm not even asking for something.

Chris
by Chris Wright
Wed Aug 09, 2017 9:44 pm
Forum: The KPG Forum
Topic: Kidney transplant patients
Replies: 10
Views: 24252

Re: Kidney transplant patients

rheaybou wrote:Do you have any additional information on who you represent? Where the information you collect will be used?

are you affiliated to a hospital/research group? I am all for helping others with information.......but only when I know how it will be used....not just offered money.

Agreed
by Chris Wright
Mon May 08, 2017 6:02 pm
Forum: The KPG Forum
Topic: Biopsy
Replies: 6
Views: 15152

Re: Biopsy

Doctor.Rock wrote:Hi
and what I will need to take with me
Take your body :D , lie there, relax, go home.

:D :D :D :D
by Chris Wright
Mon Apr 03, 2017 6:16 pm
Forum: The KPG Forum
Topic: Babies and Nappies
Replies: 2
Views: 7247

Re: Babies and Nappies

Did it for years with both my kids, go for it.
by Chris Wright
Thu Mar 30, 2017 8:52 am
Forum: The KPG Forum
Topic: Which transplant centre, Plymouth or Bristol? Thoughts pls.
Replies: 6
Views: 12805

Re: Which transplant centre, Plymouth or Bristol? Thoughts p

Dibs, For what it's worth, the NHS produces both graft and patient survival rates for each of the renal tx centres in the UK: http://www.odt.nhs.uk/pdf/organ_specific_report_kidney_2016.pdf Page 46 onwards has that information if it is of any use to you. And sorry you're leaving Guy's, we could have...
by Chris Wright
Sun Mar 26, 2017 9:38 pm
Forum: The KPG Forum
Topic: NKF (UK) Helpline & unsupervised volunteers - caution
Replies: 8
Views: 18056

Re: NKF (UK) Helpline & unsupervised volunteers - caution

Jman,

Thanks, you did well to dig that out.

Pretty basic stuff compared to proper and full accounts, but so be it.

It'll be interesting to see if they come back with a more detailed breakdown.

C
by Chris Wright
Fri Mar 24, 2017 4:46 pm
Forum: The KPG Forum
Topic: NKF (UK) Helpline & unsupervised volunteers - caution
Replies: 8
Views: 18056

Re: NKF (UK) Helpline & unsupervised volunteers - caution

Just had a little look around their website. They say that 1500 patients contacted the helpline and 300 carers on behalf of patients, so 1800 calls in total. The helpline is open Mon to Fri, and let's assume not on Bank Hols/Public Hols. So it's open, about 52 x 5 = 260 days, minus 8 Bank Holidays= ...
by Chris Wright
Wed Oct 19, 2016 8:46 pm
Forum: The KPG Forum
Topic: Homeopathy to boost immune system pre-dialysis?
Replies: 15
Views: 45320

Re: Homeopathy to boost immune system pre-dialysis?

Homeopathy, PLEASE! All the proper evidence says it is nonsense on stilts. http://www.parliament.uk/business/committees/committees-archive/science-technology/s-t-homeopathy-inquiry/ https://www.nhmrc.gov.au/health-topics/complementary-medicines/homeopathy-review And here's an explanation why: http:/...
by Chris Wright
Thu Sep 29, 2016 10:02 pm
Forum: The KPG Forum
Topic: CMV Experiences
Replies: 4
Views: 9018

Re: CMV Experiences

Jim, My experience of CMV is from many years ago and seems to be different from yours. So i'll describe it, but suggest that your renal physicians know more than me. I was transplanted in Sept 1981 and after a few weeks had CMV. I was very ill with a massive temperature for about 3 to 4 days. My Dad...