Search found 3465 matches

by JMan
Tue Feb 12, 2019 8:30 am
Forum: The KPG Forum
Topic: Long term dialysis
Replies: 4
Views: 19152

Re: Long term dialysis

Hi Duker.. Sounds like you do need some external help. Dialysis is shit.. I'm back on dialysis after a failed transplant in 2005.. I'm not even going to say there are people better/worse off than you cos that's no help, a fact, but no help. Have you tried counselling.. KidneyCareUK offers a phone co...
by JMan
Sun Feb 03, 2019 2:54 pm
Forum: The KPG Forum
Topic: Vegetairian on dialysis
Replies: 8
Views: 25168

Re: Vegetairian on dialysis

There's some veggie's and even vegans on dialysis. Both work well if you have good clearance and dialyse frequently. Well dialysis works well if you have good clearance:) NONE of the books below claim to 'cure' kidney disease, and most have a substantial area/list of recipes and tips for vegetarians...
by JMan
Sun Dec 30, 2018 8:54 am
Forum: The KPG Forum
Topic: New Cross Hospital Wolverhampton
Replies: 1
Views: 16993

Re: New Cross Hospital Wolverhampton

@elizzynew412

I'm pretty sure theres some folks on the Facebook groups (kidneycareUK, etc) that are under Wolverhampton. Its not an area I'm that familiar with however:)
by JMan
Sat Dec 29, 2018 6:06 pm
Forum: The KPG Forum
Topic: Advice please on protecting a fistula in a physical job
Replies: 5
Views: 20077

Re: Advice please on protecting a fistula in a physical job

There are a few products that are a bit like 'support sleeves' for fistulas. Mostly shipped from the USA I think.. I've never used one myself but they seem to add some protection.

https://www.etsy.com/uk/listing/2442315 ... ver-sleeve
by JMan
Tue Dec 04, 2018 2:18 pm
Forum: The KPG Forum
Topic: Advice please on protecting a fistula in a physical job
Replies: 5
Views: 20077

Re: Advice please on protecting a fistula in a physical job

There should be some people:) Generally heavy lifting really isn't advised, and basically at your own discretion when the fistula has fully matured (about 6 months, in my opinion anyway). I can lift a 5 litre can of dialysate, but not repeatedly and nor carry for a long distance.. Used to lug stock ...
by JMan
Sun Dec 02, 2018 9:10 am
Forum: The KPG Forum
Topic: Dialysis Night Fever
Replies: 0
Views: 40359

Dialysis Night Fever

Just in case you've missed this hilarious parody of the Abba number!

https://www.facebook.com/flametreeyogas ... 048450509/
by JMan
Sun Aug 19, 2018 9:10 am
Forum: The KPG Forum
Topic: UK Renal Association Guidelines for transplantees
Replies: 2
Views: 13314

Re: UK Renal Association Guidelines for transplantees

More from a clinical approach but useful, especially as most hospitals seem to 'appear' to make up their own rules as they go along! :)
by JMan
Sun Aug 12, 2018 10:24 am
Forum: The KPG Forum
Topic: My Kidney experiences
Replies: 1
Views: 11880

Re: My Kidney experiences

Thanks for sharing:)

Will take a looksee
by JMan
Tue Jun 12, 2018 7:41 am
Forum: The KPG Forum
Topic: Reviews of UK Dialysis Units
Replies: 1
Views: 10905

Re: Reviews of UK Dialysis Units

To some degree 'Global Dialysis' allows for reviews of dialysis centres in the UK and globally..

http://www.globaldialysis.com/for-dialy ... ntres.html



Thats all I can think of, but not UK specific review sites:
by JMan
Fri May 18, 2018 4:54 pm
Forum: The KPG Forum
Topic: High PTH in UK
Replies: 12
Views: 24588

Re: High PTH in UK

I had a parathroidectomy many moons ago. My calcium was unstable and at dangerous levels. I've not had major consequences since and bone density and Calcium etc is monitored regularly...
by JMan
Fri May 18, 2018 4:41 pm
Forum: The KPG Forum
Topic: Help me lower my phosphate
Replies: 12
Views: 21348

Re: Help me lower my phosphate

Why does it matter if your phosphate is high? I am just learning about this stuff with my dad, who is about to start dialysis. His renal specialist nurse said his phosphates were over 1000 in his urine (edit. I probably mean blood!!). So we went away and looked up phosphates in food, and decided he...
by JMan
Fri May 18, 2018 4:37 pm
Forum: The KPG Forum
Topic: Cornell v Columbia - any suggestions?
Replies: 2
Views: 11047

Re: Cornell v Columbia - any suggestions?

Its mostly UK users in this group so you may not get many replies..

Possibly try one of the US forums..

I haven't a clue where any of those places are:D
by JMan
Sat Mar 24, 2018 2:00 pm
Forum: The KPG Forum
Topic: Hospital stay after transplant?
Replies: 14
Views: 39558

Re: Hospital stay after transplant?

Have a good read of the 'Top Tips on transplants at the top of this forum' Pretty much covers a lot and you can add or reply to Q's there too:)

Good luck

From what I remember I was out and about pretty quick post tx.. Its always a shock!
by JMan
Sat Mar 24, 2018 1:58 pm
Forum: The KPG Forum
Topic: Hello and welcome to the forum
Replies: 0
Views: 33368

Re: Hello and welcome to the forum

Welcome to the group.
by JMan
Sat Mar 10, 2018 3:45 pm
Forum: The KPG Forum
Topic: In need of a severe RANT!
Replies: 2
Views: 8092

Re: In need of a severe RANT!

Your post reads very very much like my experience of a Fresenius dialysis unit. I'd ask where it is ,(but feel free to PM me your response). I was in a newish, unit in London, and also helped make up a small flowerbed with one of the staff and family. A little bench, nice to wait for transport in th...