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- Wed May 03, 2023 5:37 pm
- Forum: The KPG Forum
- Topic: Spring Boosters
- Replies: 3
- Views: 9182
Re: Spring Boosters
I just told them I'd had a transplant and they believed me
- Sun Apr 16, 2023 9:26 pm
- Forum: The KPG Forum
- Topic: "Patients Know Best"
- Replies: 8
- Views: 16395
Re: "Patients Know Best"
Glad it's not just me who is so unimpressed! Wonder how much kickback the UKKA could be getting??
- Sun Apr 16, 2023 9:06 pm
- Forum: The KPG Forum
- Topic: Spring Boosters
- Replies: 3
- Views: 9182
Re: Spring Boosters
I've got mine booked on the 24th
- Fri Apr 14, 2023 1:46 pm
- Forum: The KPG Forum
- Topic: "Patients Know Best"
- Replies: 8
- Views: 16395
"Patients Know Best"
How are other people finding this forced transition away from PatientView? I'm so disappointed, so far PKB and the UK KIdney Association have done (imho) a really crappy job of providing a service to us kidney patients when PatientView was so good!
- Mon Apr 10, 2023 5:01 pm
- Forum: The KPG Forum
- Topic: New to forum
- Replies: 12
- Views: 12578
Re: New to forum
It's entirely possible to live a full life with that kind of function level, but it's certainly good to know why it's changing. Depending pn your age, renal function does decrease as we get older.
- Mon Apr 10, 2023 5:00 pm
- Forum: The KPG Forum
- Topic: End of mask wearing
- Replies: 4
- Views: 6519
Re: End of mask wearing
I have my booster jab in two weeks' time. Folks in my renal clinic wear masks as required by the staff but when I was in as a surgical inpatient last week they didn't until I got into theatre.
- Sun Mar 05, 2023 8:22 pm
- Forum: The KPG Forum
- Topic: New to forum
- Replies: 12
- Views: 12578
Re: New to forum
Hi there! There's not a huge amount of traffic on the forum these days so I'm glad you found us. First thing - try not to worry too much about a single result. It's all about a trend and direction, not the number. Also the reason for the eGFR being what it is, is very important. For example, my eGFR...
- Mon Jan 30, 2023 4:53 pm
- Forum: The KPG Forum
- Topic: A question I never thought I'd ask but.......
- Replies: 13
- Views: 19365
Re: A question I never thought I'd ask but.......
There's nothing wrong with it staying up as a searchable archive for folks that find it. If the cost of keeping it up is low I'd like to do that.
In terms of attracting new participants, I think that really depends on whether the Guide in general is going to be maintained as a resource?
In terms of attracting new participants, I think that really depends on whether the Guide in general is going to be maintained as a resource?
- Mon Dec 19, 2022 10:08 pm
- Forum: The KPG Forum
- Topic: A question I never thought I'd ask but.......
- Replies: 13
- Views: 19365
Re: A question I never thought I'd ask but.......
Heh to be honest this is by far the longest surviving PHP Bulletin Board I've *ever* used and I've been admins for quite a few. I think Covid has had a significant impact on most online fora and social media groups as far as I can tell in my work. Online behaviours have changed. I guess the question...
- Mon Nov 21, 2022 12:15 am
- Forum: The KPG Forum
- Topic: A question I never thought I'd ask but.......
- Replies: 13
- Views: 19365
Re: A question I never thought I'd ask but.......
I don't think it's entirely dead, but Covid changed so many things. It's probably harder to find for n00bs than it used to be through search engines, too. I wonder ho wmuch traffic the KPG site itself gets these days?
- Sun Jul 31, 2022 10:56 pm
- Forum: The KPG Forum
- Topic: PKD patients - experience of Polycystic Liver?
- Replies: 1
- Views: 3932
Re: PKD patients - experience of Polycystic Liver?
Really? No-one??
- Wed Jul 06, 2022 12:53 pm
- Forum: The KPG Forum
- Topic: PKD patients - experience of Polycystic Liver?
- Replies: 1
- Views: 3932
PKD patients - experience of Polycystic Liver?
Hey folks - as above, I'm curious for PKD folks what your liver experiences have been? I actually had to have surgery on a liver cyst before I'd even got to transplant, but it's not been front of mind for quite a few years. Now though, my liver is completely covered and has massively increased in si...
- Mon Jun 13, 2022 10:08 am
- Forum: The KPG Forum
- Topic: Live Transplant - what to expect?
- Replies: 7
- Views: 6872
Re: Live Transplant - what to expect?
One thing I'd say which might be controversial - I did not feel 'better' for the first few weeks at all. In fact I felt worse! I'd been coping on a eGFR of 10-12 for a few months before my pre-emptive living donor transplant from a friend, so had no dialysis or anything. As such, I'd had no restrict...
- Mon Jun 13, 2022 9:30 am
- Forum: The KPG Forum
- Topic: Live Transplant - what to expect?
- Replies: 7
- Views: 6872
Re: Live Transplant - what to expect?
Hello! I had my live donor tx at Guys in 2008 and they were fantastic throughout. There's a checklist somewhere of things to take for while you're in hospital on this forum, worth checking out! I definitely recommend earplugs and an eye mask for when you want to sleep during the day time (and you pr...
- Tue Apr 05, 2022 5:58 pm
- Forum: The KPG Forum
- Topic: My Covid experience…so far
- Replies: 5
- Views: 7392
Re: My Covid experience…so far
The doctors I spoke to were confident that there's no impact on kidney function identified thus far. My blood pressure was pretty high before they discharged me but it has settled back down a couple of days later. My check up isn't for another few weeks, do keep us posted!