Search found 3468 matches
- Thu Aug 24, 2023 5:43 pm
- Forum: The KPG Forum
- Topic: "Patients Know Best"
- Replies: 8
- Views: 16469
Re: "Patients Know Best"
I thankfully exported my entire KPV database before the closure.. But of course it only contains that historical data.. Still useful, and much much easier to refer to.. What insults me is that the founders/creators have been been awarded for what is, a very low quality product and supposedly a 'soci...
- Wed May 31, 2023 8:45 pm
- Forum: The KPG Forum
- Topic: Lake District watch out!
- Replies: 2
- Views: 7730
Re: Lake District watch out!
I'll try.
A little dubious. Don't know the unit. I think I was still on PD or transplanted last time I went as a kid.
Also first time I've DAFB since 2018 which wasn't a great experience
Hoping for smooth train travel HAHA and not 'green and scenery overload!' lol
A little dubious. Don't know the unit. I think I was still on PD or transplanted last time I went as a kid.
Also first time I've DAFB since 2018 which wasn't a great experience
Hoping for smooth train travel HAHA and not 'green and scenery overload!' lol
- Fri May 19, 2023 5:59 pm
- Forum: The KPG Forum
- Topic: Lake District watch out!
- Replies: 2
- Views: 7730
Lake District watch out!
Getting a little break to the Lake District next month.
Oooh what goes on there then!
Oooh what goes on there then!
- Tue Apr 18, 2023 7:43 am
- Forum: The KPG Forum
- Topic: "Patients Know Best"
- Replies: 8
- Views: 16469
Re: "Patients Know Best"
A lot! Another issue is updates are slower. Usually with PV I'd have my results by now. Samples at the labs around midday yesterday, as we take them straight to the lab! I'd have a notification waiting for me in the morning. Sometimes Same Day! This morning, nothing! The bloody thing is 13 years old !
- Sun Apr 16, 2023 6:41 pm
- Forum: The KPG Forum
- Topic: Spring Boosters
- Replies: 3
- Views: 9222
Spring Boosters
https://www.kidney.org.uk/News/coronavi ... r_patients
I've had a couple of texts, and I think a letter saying a further invite will be sent out.
I've had a couple of texts, and I think a letter saying a further invite will be sent out.
- Sun Apr 16, 2023 5:46 pm
- Forum: The KPG Forum
- Topic: "Patients Know Best"
- Replies: 8
- Views: 16469
Re: "Patients Know Best"
Its absolute shite I've been on one or 2 of the 'feedback/patient participation workshops. (about 150 people on). https://youtu.be/zOQmrb5-O30 CRINGEWORTHY Basically going over and over their 'sales pitch' of how it works at the moment. I was due to do a 1to1 with one of the team of PKB but they arr...
- Thu Apr 13, 2023 2:12 pm
- Forum: The KPG Forum
- Topic: existing-pip-claimants-may-lose-support-group-status-as-early-as-2026
- Replies: 0
- Views: 28977
existing-pip-claimants-may-lose-support-group-status-as-early-as-2026
https://www.benefitsandwork.co.uk/news/existing-pip-claimants-may-lose-support-group-status-as-early-as-2026?utm_source=iContact&utm_medium=email&utm_campaign=Benefits%20and%20Work&utm_content=V2%2014%20April%202023%20News This is relevant if your also claiming Universal Credit. The B***...
- Sun Apr 09, 2023 6:15 pm
- Forum: The KPG Forum
- Topic: New to forum
- Replies: 12
- Views: 12663
Re: New to forum
Welcome to the forum. Its daunting, even terrifying, but treatments are good these days. Your GP may refer you to a neurologist in time, (kidney specialist) But this is might not just be yet as you still have plenty of kidney function We have 2 fantastic support charities in the UK as well, KidneyCa...
- Sun Apr 09, 2023 6:12 pm
- Forum: The KPG Forum
- Topic: End of mask wearing
- Replies: 4
- Views: 6561
Re: End of mask wearing
Still got signs up, and staff are wearing if they visit (home dialysis) everyone was at my clinic this morning. Chemist, staff are still wearing when serving. Also I've received a text message saying that I will be invited to have a 'spring booster'. My carer recently tested positive. as well From G...
- Tue Jan 31, 2023 7:38 am
- Forum: The KPG Forum
- Topic: suggestion... how about introducing ourselves??
- Replies: 946
- Views: 2293122
Re: suggestion... how about introducing ourselves??
Low iron levels will make you feel really lousy. And totally out of energy. Iron There's no reason in time you won't be able to enjoy exercise again. But if your levels continue to go down you may be looking at treatment options. Its scary as hell, but as humans we're very good at adapting. Even if ...
- Fri Jan 06, 2023 5:19 pm
- Forum: The KPG Forum
- Topic: A question I never thought I'd ask but.......
- Replies: 13
- Views: 19444
Re: A question I never thought I'd ask but.......
I would see it a great shame to see the forum go. It serves a purpose. In reality not everyone is on social media, for whatever reason. I hate it but use it for work and it acts as a contact tool cos every other bugger is using it! I rarely post on the groups unless I've got a question, or its a cur...
- Tue Aug 23, 2022 3:39 pm
- Forum: The KPG Forum
- Topic: Cost of living Food - Community Grocers
- Replies: 1
- Views: 4909
Cost of living Food - Community Grocers
Cost of living - FOOD Hi all, just wanted to mention, you may have a Community Grocers in your area. https://communitygrocery.org.uk/how-we-can-help/ These are NOT food banks, more of a co op grocery, and backed by the All Nations churches. You register with an annual fee, (£5) to become part of a c...
- Sat Aug 06, 2022 7:38 am
- Forum: The KPG Forum
- Topic: Long Covid - the risks
- Replies: 1
- Views: 5364
Long Covid - the risks
https://health-study.joinzoe.com/blog/covid-long-covid-risk#part-6?utm_source=0408Newsletter&utm_medium=Mailchimp&utm_campaign=Newsletter_Weekly Not that I've got long covid, but friends have, and its massively effecting their life daily My only comparison is perhaps my recovery from meningi...
- Sun Mar 13, 2022 5:32 pm
- Forum: The KPG Forum
- Topic: How “back to normal” are you?
- Replies: 4
- Views: 6861
Re: How “back to normal” are you?
A little more. Mask in local shops, and taxis. Cases are going up nationally, even tho they are coming down in the UK. The gov has continued to BADLY report stats (see ZOE studies site) I've been to a few small meetings and even yoga class unmasked. Not received any updates from hospital but going i...
- Tue Dec 28, 2021 8:44 am
- Forum: The KPG Forum
- Topic: Rubbish veins
- Replies: 5
- Views: 9882
Re: Rubbish veins
It seems like you need a sit down with whoever is your senior consultant/team to have a 'plan of action' to try and find some solutions. There's usually a way..
This may be tough during covid when appointments are rare as hens teeth, but wish you well.
This may be tough during covid when appointments are rare as hens teeth, but wish you well.