Search found 75 matches

by MatthewC
Sat Jul 22, 2023 2:57 pm
Forum: The KPG Forum
Topic: "Patients Know Best"
Replies: 8
Views: 16395

Re: "Patients Know Best"

It seems to be one of those things that often happens in the modern world: start with a system which works, don't bother ask users and then "improve" it for the worse! My bank has done it as well - the old sensible presentation of my statement has gone to one with lots of white space and v...
by MatthewC
Tue Feb 28, 2023 3:11 pm
Forum: The KPG Forum
Topic: Advice
Replies: 1
Views: 3181

Re: Advice

Hi Bobby This is a late reply but the forum is very quiet these days. Did you get some more results? The ones you gave didn't look too bad, although the eGFR was a bit low (which is probably the reason for more tests). Having said it was low, mine is 55, but I'm a donor and it has gently crept up si...
by MatthewC
Fri Jun 17, 2022 3:13 pm
Forum: The KPG Forum
Topic: Live Transplant - what to expect?
Replies: 7
Views: 6833

Re: Live Transplant - what to expect?

I donated to my brother in 2013 (at St George's) and so, for a donor's point of view, have a look at my blog http://diaryofakidneydonor.blogspot.co.uk/. I was surprised to realise too late that he felt so bad that he hadn't ever really thought of asking the questions you are asking befor the operati...
by MatthewC
Fri Apr 02, 2021 3:51 pm
Forum: The KPG Forum
Topic: Puzzling eGFR results
Replies: 3
Views: 4644

Re: Puzzling eGFR results

I was told some years ago that eGFR (the "e" is for "estimated") was only usefully accurate at low figures. If you have a "normal" kidney function (say above 50), eGFR can give some very unreliable results, so I wouldn't worry about it. I think, before I donated a kidne...
by MatthewC
Sat Feb 20, 2021 3:41 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 126689

Re: Vaccines for Covid 19

Wife and I had ours (AZ) last Saturday - we both had a minor reaction which was slightly different. She felt very shivery for an hour or so late that evening, and then generally off colour; I woke on the Sunday feeling poorly and was off food. We both felt better late on Sunday, pretty good by Monda...
by MatthewC
Fri Jun 05, 2020 7:36 pm
Forum: The KPG Forum
Topic: Low eGFR before i'm 30 years old
Replies: 4
Views: 4724

Re: Low eGFR before i'm 30 years old

Don't forget that eGFR means "estimated GFR" and I believe that I heard the method of estimating is not accurate at high figures - it is used mostly for people who have a seriously low eGFR. As I recall, I had eGFR at around 70 before I donated but the accurate GFR (only ever done once!) w...
by MatthewC
Sun May 26, 2019 2:25 pm
Forum: The KPG Forum
Topic: Will diet make a difference?
Replies: 10
Views: 22427

Re: Will diet make a difference?

Sorry I can't help with the diet question, but your symptoms sound pretty much the same as my brother's before I donated to him. One thing i have noticed over the past few months is sore joints and general aching in my back, hips and pelvis. Even when rested in the morning, I wake up and struggle to...
by MatthewC
Sun Apr 14, 2019 4:25 pm
Forum: The KPG Forum
Topic: after a kidney transplant
Replies: 6
Views: 20599

Re: after a kidney transplant

thank you for your reply wagolynn,i go the renal unit at the royal London hospital every week for check ups but I really didn't think they would answer my question ,however I will ask them for information or where I can get pamplets regarding this,thanks again I would hope that every transplant cen...
by MatthewC
Sun Apr 14, 2019 4:17 pm
Forum: The KPG Forum
Topic: Does Donating a Kidney Shorten Your life?
Replies: 4
Views: 17440

Re: Does Donating a Kidney Shorten Your life?

No, not in my view. I'm male and I donated to my younger brother over 5 years ago - we are both in excellent health and have been ever since his medication was sorted (and his egfr is now better than mine!). I honestly do not notice the absence of a kidney at all, except for the fact that I don't us...
by MatthewC
Mon Aug 06, 2018 9:53 am
Forum: The KPG Forum
Topic: Nephrology letter
Replies: 7
Views: 19656

Re: Nephrology letter

While I understand that not everyone can help or know what I am asking about and if you hadn’t answered @wagolynn I would be very anxious by now . It is a sad that even thought my post generated nearly 100 views only one person tried to help . Because Wagolynn very promptly gave the answer that mos...
by MatthewC
Sat Jan 27, 2018 7:42 pm
Forum: The KPG Forum
Topic: Living Kidney donor loss earning
Replies: 4
Views: 11874

Re: Living Kidney donor loss earning

emmamays1978 wrote: Also any advice on what we will need to take to hospital.
You might like to look at my blog http://diaryofakidneydonor.blogspot.co.uk/, especially the one headed "Ten Tips for Potential Living Kidney Donors".

Matthew
(My brother is doing great and so am I, more than 4 years on)
by MatthewC
Wed Aug 23, 2017 3:54 pm
Forum: The KPG Forum
Topic: Donor is not a tissue match
Replies: 1
Views: 6939

Re: Donor is not a tissue match

That's a shame but it apparently does not prevent the transplant; it depends exactly on a whole lot of things as they can now prescribe drugs to overcome the mis-match in many cases. However, are you sure that really is what was said? As a donor, I was very confused about this and I think it was bec...
by MatthewC
Mon Jul 10, 2017 9:35 pm
Forum: The KPG Forum
Topic: Donor
Replies: 4
Views: 11603

Re: Donor

I'm guessing it's age related, as my eGFR ia about 50 now, vs 80 before. That's fine by me as I know you lose function every year anyway, as you get past 50-ish, but my recipient (a brother 7 years younger) nw has a better eGFR than mine!
by MatthewC
Sun Jun 12, 2016 7:46 pm
Forum: The KPG Forum
Topic: Donor for iGAN Patient
Replies: 1
Views: 6781

Re: Donor for iGAN Patient

Hi
I put a lot of info on the donor process on my blog http://diaryofakidneydonor.blogspot.co.uk/ (donated Oct 2013). I afraid I doubt that your donor can get through the process as quickly as you hope.
HTH

Matthew
by MatthewC
Mon Mar 28, 2016 2:35 pm
Forum: The KPG Forum
Topic: Was My Post Deleted - Documentary Screening
Replies: 26
Views: 59768

Re: Was My Post Deleted - Documentary Screening

every once in a while someone comes to the forum claiming to be the bearer of a previously unknown miracle cure ... and I get on my high horse and say ... 'give it a rest fella ... do you think we would be wasting our time here if there was a miracle cure!!' Absolutely. My brother is a GP; once, wh...