Search found 72 matches

by MatthewC
Fri Apr 02, 2021 3:51 pm
Forum: The KPG Forum
Topic: Puzzling eGFR results
Replies: 3
Views: 375

Re: Puzzling eGFR results

I was told some years ago that eGFR (the "e" is for "estimated") was only usefully accurate at low figures. If you have a "normal" kidney function (say above 50), eGFR can give some very unreliable results, so I wouldn't worry about it. I think, before I donated a kidney some years ago, my eGFR was ...
by MatthewC
Sat Feb 20, 2021 3:41 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4904

Re: Vaccines for Covid 19

Wife and I had ours (AZ) last Saturday - we both had a minor reaction which was slightly different. She felt very shivery for an hour or so late that evening, and then generally off colour; I woke on the Sunday feeling poorly and was off food. We both felt better late on Sunday, pretty good by Monda...
by MatthewC
Fri Jun 05, 2020 7:36 pm
Forum: The KPG Forum
Topic: Low eGFR before i'm 30 years old
Replies: 4
Views: 1786

Re: Low eGFR before i'm 30 years old

Don't forget that eGFR means "estimated GFR" and I believe that I heard the method of estimating is not accurate at high figures - it is used mostly for people who have a seriously low eGFR. As I recall, I had eGFR at around 70 before I donated but the accurate GFR (only ever done once!) was 85 or s...
by MatthewC
Sun May 26, 2019 2:25 pm
Forum: The KPG Forum
Topic: Will diet make a difference?
Replies: 10
Views: 16813

Re: Will diet make a difference?

Sorry I can't help with the diet question, but your symptoms sound pretty much the same as my brother's before I donated to him. One thing i have noticed over the past few months is sore joints and general aching in my back, hips and pelvis. Even when rested in the morning, I wake up and struggle to...
by MatthewC
Sun Apr 14, 2019 4:25 pm
Forum: The KPG Forum
Topic: after a kidney transplant
Replies: 6
Views: 16089

Re: after a kidney transplant

thank you for your reply wagolynn,i go the renal unit at the royal London hospital every week for check ups but I really didn't think they would answer my question ,however I will ask them for information or where I can get pamplets regarding this,thanks again I would hope that every transplant cen...
by MatthewC
Sun Apr 14, 2019 4:17 pm
Forum: The KPG Forum
Topic: Does Donating a Kidney Shorten Your life?
Replies: 4
Views: 14184

Re: Does Donating a Kidney Shorten Your life?

No, not in my view. I'm male and I donated to my younger brother over 5 years ago - we are both in excellent health and have been ever since his medication was sorted (and his egfr is now better than mine!). I honestly do not notice the absence of a kidney at all, except for the fact that I don't us...
by MatthewC
Mon Aug 06, 2018 9:53 am
Forum: The KPG Forum
Topic: Nephrology letter
Replies: 7
Views: 15354

Re: Nephrology letter

While I understand that not everyone can help or know what I am asking about and if you hadn’t answered @wagolynn I would be very anxious by now . It is a sad that even thought my post generated nearly 100 views only one person tried to help . Because Wagolynn very promptly gave the answer that mos...
by MatthewC
Sat Jan 27, 2018 7:42 pm
Forum: The KPG Forum
Topic: Living Kidney donor loss earning
Replies: 4
Views: 8032

Re: Living Kidney donor loss earning

emmamays1978 wrote: Also any advice on what we will need to take to hospital.
You might like to look at my blog http://diaryofakidneydonor.blogspot.co.uk/, especially the one headed "Ten Tips for Potential Living Kidney Donors".

Matthew
(My brother is doing great and so am I, more than 4 years on)
by MatthewC
Wed Aug 23, 2017 3:54 pm
Forum: The KPG Forum
Topic: Donor is not a tissue match
Replies: 1
Views: 5210

Re: Donor is not a tissue match

That's a shame but it apparently does not prevent the transplant; it depends exactly on a whole lot of things as they can now prescribe drugs to overcome the mis-match in many cases. However, are you sure that really is what was said? As a donor, I was very confused about this and I think it was bec...
by MatthewC
Mon Jul 10, 2017 9:35 pm
Forum: The KPG Forum
Topic: Donor
Replies: 4
Views: 8772

Re: Donor

I'm guessing it's age related, as my eGFR ia about 50 now, vs 80 before. That's fine by me as I know you lose function every year anyway, as you get past 50-ish, but my recipient (a brother 7 years younger) nw has a better eGFR than mine!
by MatthewC
Sun Jun 12, 2016 7:46 pm
Forum: The KPG Forum
Topic: Donor for iGAN Patient
Replies: 1
Views: 5732

Re: Donor for iGAN Patient

Hi
I put a lot of info on the donor process on my blog http://diaryofakidneydonor.blogspot.co.uk/ (donated Oct 2013). I afraid I doubt that your donor can get through the process as quickly as you hope.
HTH

Matthew
by MatthewC
Mon Mar 28, 2016 2:35 pm
Forum: The KPG Forum
Topic: Was My Post Deleted - Documentary Screening
Replies: 26
Views: 52050

Re: Was My Post Deleted - Documentary Screening

every once in a while someone comes to the forum claiming to be the bearer of a previously unknown miracle cure ... and I get on my high horse and say ... 'give it a rest fella ... do you think we would be wasting our time here if there was a miracle cure!!' Absolutely. My brother is a GP; once, wh...
by MatthewC
Sat Dec 26, 2015 12:03 pm
Forum: The KPG Forum
Topic: Hydration after Transplant
Replies: 10
Views: 26216

Re: Hydration after Transplant

I had my annual hospital check last this week and asked the neph about this subject, in particular how much fluid I should take daily and whether tea, coffee and beer count. He said that he is happy if I have even just 2 litres per day, and suggested half water/cordial and half tea/coffee, so my 2.5...
by MatthewC
Tue Dec 01, 2015 2:37 pm
Forum: The KPG Forum
Topic: Kidney removal
Replies: 3
Views: 8127

Re: Kidney removal

Hi Janita I donated my left kidney laprascopically two years ago so I've been through this! See my blog for lots of gory details. The surgeon said to me about the possibility of opening me up if needed. Don't worry though - it's something they have to say to you and the consent form will include it ...
by MatthewC
Thu Nov 05, 2015 8:40 am
Forum: The KPG Forum
Topic: Introduction: I have IgAN
Replies: 13
Views: 33166

Re: Introduction: I have IgAN

Are both your sisters going? Have they not done a tissue type match yet? In my case that test was done separately on three potential donors and then only one went forward for more testing (after a family discussion as to who was the first choice!). NB The testing can take months so they need to get ...