Search found 1381 matches

by rheaybou
Mon Feb 15, 2021 1:03 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4892

Re: Vaccines for Covid 19

Had mine nearly 2 weeks ago. Was impatient to wait for the invite from my GP so took matters into my own hands. Qualified as ECV in the 70-74 age group as a TX patient. Had a little headache and some aches a few days later, but nothing worse than I have ever had with the flu jab. Had the Oxford jab,...
by rheaybou
Wed Feb 13, 2019 8:23 pm
Forum: The KPG Forum
Topic: Long term dialysis
Replies: 4
Views: 14812

Re: Long term dialysis

Hi Ducker, Dropped you a message and think I remember you are at Doncaster. Maybe it won’t help, but if you need another face to vent at and maybe someone who understands dialysis to talk to then let me know and I can try and call past. Dialysis is bollock. But there is always a glimmer of hope of t...
by rheaybou
Mon Jan 28, 2019 9:37 pm
Forum: The KPG Forum
Topic: Lucky me.
Replies: 3
Views: 13411

Re: Lucky me.

Good luck to you both and best wishes for a speedy and trouble free recovery. 18th feb 2013, the years soon fly past and you just won’t know what hit you after all that time not taking a pee. It’s worth every second of discomfort, worry and panic. And you have the first time you see your donor after...
by rheaybou
Sun Jan 27, 2019 8:56 pm
Forum: The KPG Forum
Topic: Vegetairian on dialysis
Replies: 8
Views: 18688

Re: Vegetairian on dialysis

It’s a good book, hope I never have to buy another copy. I was a bad dialysis patient, but this helped.
by rheaybou
Thu Jan 17, 2019 8:37 pm
Forum: The KPG Forum
Topic: Vegetairian on dialysis
Replies: 8
Views: 18688

Re: Vegetairian on dialysis

As a general cook book/guide then the NFK backed book. It’s not veggie based but sure talking to a dietician they can use as a guide and adapt good meat free alternatives. https://www.amazon.co.uk/Eating-Well-Kidney-Failure-Practical/dp/1859591167/ref=nodl_ I got a copy early 2012 to help me out, th...
by rheaybou
Thu Jan 17, 2019 8:33 pm
Forum: The KPG Forum
Topic: Life Insurance Post Transplant
Replies: 2
Views: 12347

Re: Life Insurance Post Transplant

I’m lucky to have life insurance through the company I work for, covers existing medical issues. Looked into it for a private policy and it’s very expensive post TX, even 5 years out.
by rheaybou
Mon Oct 15, 2018 10:58 am
Forum: The KPG Forum
Topic: Lost the race
Replies: 9
Views: 20507

Re: Lost the race

I took a punt and lost. I ran out of kidney function before a possible transplant was organised. Consequently I'm the proud owner of a tunneled neckline as I did not have a fistula. It happens very quickly when it happens that's for sure. I've now had 3 consecutive days of haemo and now will settle...
by rheaybou
Mon Oct 15, 2018 10:54 am
Forum: The KPG Forum
Topic: Anyone experienced worm-like white discharge in urine?
Replies: 28
Views: 385180

Re: Anyone experienced worm-like white discharge in urine?

I had also experienced this problem.When i went to doctors they subjected me to do ultrasound,Urine test etc but nothing found and told me that all ok.But i had felt weekness and pain in kidney after urine but doctors could not judge disease.After this experience i went for homeopathic medicine and...
by rheaybou
Mon Oct 15, 2018 10:05 am
Forum: The KPG Forum
Topic: Mycophenolate change
Replies: 0
Views: 11712

Mycophenolate change

I have been swapped from Myfenax branded Mycophenolate to a generic (made in same factory I am told (now an off brown and not white). As with many on this amazing drug I will have 3-4 bouts of upset stomach over 12 months and it will pass in 2-3 days. Now moving to the new supplied version I have ha...
by rheaybou
Tue Sep 25, 2018 3:52 pm
Forum: The KPG Forum
Topic: Unidentified Disease
Replies: 13
Views: 37240

Re: Unidentified Disease

Could it be that the condition is just a mutation of Alports that has not been identified? My fault is the only reported mutation and is Alports, it seems that more variations are being found. Prof Albert Ong at Sheffield University is a genetic kidney disease expert attached to Sheffield Northern G...
by rheaybou
Tue Sep 25, 2018 9:35 am
Forum: The KPG Forum
Topic: Transplant question
Replies: 10
Views: 16394

Re: Transplant question

It was about this time 7 years ago I joined the list. Any call at home or on my mobile woul dhave me jumping and rushing to the phone. When going away for a few days I was just asked to let the transplant unit know (within UK) and would be taken off (suspended) the TX list for time out of the UK on ...
by rheaybou
Wed Apr 18, 2018 9:00 am
Forum: The KPG Forum
Topic: Fistula pressure
Replies: 15
Views: 26561

Re: Fistula pressure

There is no escaping from the fact a neckline can can only achieve half the flow rate of a fistula, and this will be inadequate if the kidneys have stopped working.. Was never told that about my Tesio line. Maybe that is why my numbers took so long to get to an acceptable level for the LD transplan...
by rheaybou
Wed Apr 18, 2018 7:54 am
Forum: The KPG Forum
Topic: Size of PD supplies for transport
Replies: 5
Views: 7051

Re: Size of PD supplies for transport

The amount you will need to transport will all depend on your prescription, this is liable to change. PD supplies were delivered once a month from Baxter with about 3-4 week buffer stock. https://fsgssucks.blogspot.co.uk/2014/11/week-3-dialysis-transition-from-hemo-to.html This image is what you sho...
by rheaybou
Mon Apr 02, 2018 1:40 pm
Forum: The KPG Forum
Topic: Fear of tx failure?
Replies: 9
Views: 18246

Re: Fear of tx failure?

Having the same niggling thoughts at the back of my mind. Sat here with my daughter playing and thinking how would she be without her dad three mornings a week, or sleeping all weekend. How would we cope with our finances? Would I be lucky enough to get a second transplant. The whole 10 year life ex...
by rheaybou
Wed Mar 21, 2018 9:16 pm
Forum: The KPG Forum
Topic: Hospital stay after transplant?
Replies: 14
Views: 28528

Re: Hospital stay after transplant?

You are entertained in hospital, given little tasks such as fluid balance to pass the time between meals and I was educated on medication on three occasions. You may have the delightful removal of any neckline/PD catch to have done, took my PD catch out at same time as transplant but had tunnelled n...