Kidney Patient Guide

Sorry to hear you are having such a rough time. I agree with thumps in that I’m sorry not to have the answer to your question. However I have an observation - As you have had kidney failure and been on dialysis for so long, your renal function (or lack of it) is not changing.Therefore as your sympto...

Yes got one of these plus a text from my GP. Booked in for next Friday. This will be No. 9.
I’m doing my best to live a “normal” life, but I still get a bit twitchy if people are a bit close physically (especially if they have a cough!).

Spam Fritters, school lunch. Like eating glue!

Lovely to see you Wagolyn. It’s been a while.

Carry on the good work.
We maybe don’t post as often as we used to, but it’s always nice to know you are here.
Thanks

Hi Peter, With an eGFR of 60 your symptoms are unlikely to be due to renal toxaemia. You seem to be having a tough time. Black stools can be due to medication (Iron and others) or bleeding into your bowel. This may be related to your tender stomach. You really need to be assessed by a doctor. As you...

Seasons Greetings.
Wishing a peaceful, happy and healthy Christmas to you all. X

I had always wondered how people got food bank vouchers. (Maybe you all knew already). As a result of some volunteering I’ve done I can answer - through your local citizens advice service. If they can’t refer you directly they can tell you who can. In some areas they are also responsible for distrib...

Polly

Go for it!
Start a new thread. If you need any help just ask.

Sue

Rik, I have to admit I was wondering the same thing. It’s rather sad. When I originally joined in 2014 there was so much happening. People were so helpful with my dialysis questions and people posting their stories almost felt like old friends. (I would love to know how Jooles and Grey are getting o...

Hi Becky225, Welcome to the forum. The important thing with eGFR is the trend. If it is bobbing around the same figure, there is no emergency. Maybe your GP just wants to touch base with you for a general chat and review. Maybe they just want to review medication or your general health. Don’t panic....

Hi ckd1983, I have to agree with everything Zennor said. A new kidney is transformative. I hope all goes well. I had hair loss, enough to thin my hair but not go bald. I think it was due to the “stress” of the transplant or the tacrolimus. It lasted about 6 months before resolving and my hair went b...

Dirverd,

I hope you hear about treatment and your symptoms remain mild.
Do let us know how you get on.
If you don’t get back to us we will fear you are more unwell!

Sue

Just wondering after the last 2 year show everyone is doing? I’m nearly 7 years post transplant. My family think I should carry on being very covid cautious. I watch the world around me getting on with life and want to do the same. I hug my grown up children (despite one being an A&E nurse). I m...

I’ve had my 4th vaccination! No thanks to either my GP or renal unit. A contact was able to give me an email address of the clinic organiser. - from then on there was no problem. A smooth no problem process. I got home to find an email from my GP (what timing) to say they knew nothing about 4th vacc...

Gosh Thumps, that’s amazing. Which is your renal unit? I’m still being turned away. Vaccination centre say email us ?.! (They don’t give their email address). GP still not replying. I’ve been told they are short staffed but isn’t everyone. Renal unit not interested. Say ask your GP!! Can’t decide if...