Search found 68 matches

by Adam
Fri Jan 10, 2020 9:25 pm
Forum: The KPG Forum
Topic: My recent TX experience
Replies: 4
Views: 10968

Re: My recent TX experience

Yes, congratulations and best wishes!
by Adam
Sat May 16, 2015 1:00 pm
Forum: The KPG Forum
Topic: Can it get any worse
Replies: 62
Views: 194094

Re: Can it get any worse

Congratulations! I wish you all the best for the future.
by Adam
Sat May 16, 2015 12:56 pm
Forum: The KPG Forum
Topic: Grey's transplant 19th May scheduled.
Replies: 26
Views: 67919

Re: Grey's transplant 19th May scheduled.

All the best for Tuesday!
by Adam
Fri Aug 15, 2014 5:07 pm
Forum: The KPG Forum
Topic: PKD Nephrectomy
Replies: 18
Views: 29295

Re: PKD Nephrectomy

Best wishes for the op!
by Adam
Sat Jul 12, 2014 4:38 pm
Forum: The KPG Forum
Topic: Bringing creatinine down?
Replies: 13
Views: 24973

Re: Bringing creatinine down?

To perhaps put it into some context, I'm male, 6ft tall, and currently 91kg, my creatinine has ranged from 84 to 91 over the past 12 months. NHS PatientView indicates 60-120 as normal. As for exercise, I like to talk long walks in parks or along the nearby canal or river. I need do to more walking a...
by Adam
Sat Jul 12, 2014 4:29 pm
Forum: The KPG Forum
Topic: No paired match so PD it is.......
Replies: 15
Views: 22236

Re: No paired match so PD it is.......

That's one factor so it probably isn't as clear cut as I made it sound. On a positive note, whilst I was on CAPD, I didn't have to take laxatives all the time. There is an awful lot of information, as well as various possible outcomes, involved with just dialysis, so it makes sense for medical teams...
by Adam
Sun Jul 06, 2014 10:27 am
Forum: The KPG Forum
Topic: No paired match so PD it is.......
Replies: 15
Views: 22236

Re: No paired match so PD it is.......

I don't miss those chalky calcium tablets. Did anyone try the fish tablets? Maxepa? I was prescribed Maxepa so I assume you have IgA Nephropathy. To Soobee, I think it was a few weeks after my PD catheter was inserted before I had the training. I also had a test, a few weeks later, to see how well ...
by Adam
Sun Jul 06, 2014 10:15 am
Forum: The KPG Forum
Topic: Blood creatinine over 1000, how do folks feel?
Replies: 5
Views: 11880

Re: Blood creatinine over 1000, how do folks feel?

Are you a PD or HD patient? If HD, is that pre or post dialysis? Mine was always >1000 pre-dialysis, and somewhere in the 300s post-dialysis. I always felt a bit energised after HD, and as I was twilight shift patient I usually didn't get to sleep before 1am. Once I moved from PD to HD, I had enough...
by Adam
Sun Jun 29, 2014 8:59 am
Forum: The KPG Forum
Topic: Is there a problem with RPV?
Replies: 4
Views: 7170

Re: Is there a problem with RPV?

The name changed to patientview.org a few months ago. I just logged into patientview.org successfully. According to a news article there, the renalpatientview.org domain name/URL should work and redirect your browser.
by Adam
Sun Jun 22, 2014 2:04 pm
Forum: The KPG Forum
Topic: Fistula pressure
Replies: 15
Views: 37970

Re: Fistula pressure

I agree with wagolynn.
by Adam
Fri May 16, 2014 10:15 pm
Forum: The KPG Forum
Topic: hemodialysis and flatulence
Replies: 7
Views: 13637

Re: hemodialysis and flatulence

I noticed that some people, including myself, would have issues with wind whilst on HD. It came down to what we'd eaten that day (fibrous food such as celery, in my case), or ate at the start of the HD session (twilights). Talk to your renal consultant, and perhaps, more usefully, your renal dietici...
by Adam
Fri May 16, 2014 10:10 pm
Forum: The KPG Forum
Topic: Securing PD catheter?
Replies: 8
Views: 13632

Re: Securing PD catheter?

I used tape. I don't recall the brand names, but I had a papery type (blue writing on the inside of the roll) and a more fabric/gauze type (green writing). I preferred the latter as it was less irritating. I found changing the area where you apply the tape could help. By the end of my time on CAPD, ...
by Adam
Fri May 16, 2014 10:06 pm
Forum: The KPG Forum
Topic: What caused your kidney disease?
Replies: 32
Views: 88105

Re: What caused your kidney disease?

IgA nephropathy. Diagnosed by biopsy.
by Adam
Mon Sep 23, 2013 1:25 pm
Forum: The KPG Forum
Topic: Things to do on Dialysis
Replies: 7
Views: 13354

Re: Things to do on Dialysis

My fistula is located just by my left wrist. Once I had been on haemodialysis for a few months, I found I could use my left hand for minor tasks such as typing, playing video games, and generally helping out my right hand, without setting off the pressure alarms. If you do have to have haemo, you'll...
by Adam
Thu Aug 22, 2013 2:33 pm
Forum: The KPG Forum
Topic: First time dialysis, puffy eyes the day after normal??
Replies: 4
Views: 6494

Re: First time dialysis, puffy eyes the day after normal??

I suggest you ask when at your next dialysis session. I was pretty fluid overloaded when I started haemodialysis and was generally puffy and swollen all over! I also first dialysed via a Tessio neckline. Fluid will move around when you're asleep so perhaps, as previously suggested, posture overnight...