Search found 21 matches

by igor1974
Sat Aug 22, 2020 8:48 pm
Forum: The KPG Forum
Topic: BEAM
Replies: 0
Views: 2552

BEAM

If anyone feels like having a go at some online Pilates/ yoga/ resistance training sessions kidney research are offering them free to kidney patients until November. They have called the site kidney Beam. I’ve started to exercise again after a transplant in February. The site was recommended by my n...
by igor1974
Fri Apr 20, 2018 5:18 pm
Forum: The KPG Forum
Topic: Test To Donate to Husband - My Story
Replies: 15
Views: 27157

Re: Test To Donate to Husband - My Story

That's wonderful news Emma. My brother is in the process of being tested to determine whether he is fit enough to donate to me so fingers crossed. All the best to you both. Keep us informed.
by igor1974
Tue Apr 03, 2018 6:10 pm
Forum: The KPG Forum
Topic: High PTH in UK
Replies: 12
Views: 18896

Re: High PTH in UK

I take a medication called Cinacalcet to lower my PTH. It seems to be working well for me at the moment.
by igor1974
Sun Mar 11, 2018 6:34 pm
Forum: The KPG Forum
Topic: Yoga/Pilates whilst on peritoneal dialysis
Replies: 5
Views: 7940

Re: Yoga/Pilates whilst on peritoneal dialysis

It's not the haemodialysis itself that bothers me Wagolynn. It's more that after much consideration, I have come to the conclusion that peritoneal dialysis suits me better and also, having recently gone through the surgery to place the PD catheter, the thought of having to have the PD catheter remov...
by igor1974
Sat Mar 10, 2018 8:09 pm
Forum: The KPG Forum
Topic: Yoga/Pilates whilst on peritoneal dialysis
Replies: 5
Views: 7940

Re: Yoga/Pilates whilst on peritoneal dialysis

Thanks for taking the time to give advice JMan and Wagolynn. Much appreciated. The idea that I might have to change to haemodialysis is making me think twice. I think asking the Consultant is a good idea. Why didn't I think of that? Must be brain fog. I have an appointment on the 9th April so I'll a...
by igor1974
Fri Mar 09, 2018 6:07 pm
Forum: The KPG Forum
Topic: Yoga/Pilates whilst on peritoneal dialysis
Replies: 5
Views: 7940

Yoga/Pilates whilst on peritoneal dialysis

I have been given conflicting advice from the PD nurses on my unit. One says it is absolutely fine for me to start doing yoga and Pilates again now and another has said no way should I be doing either of these whilst I have a PD catheter. This is confusing and I'm not sure who is correct. I'd be int...
by igor1974
Thu Mar 08, 2018 5:13 pm
Forum: The KPG Forum
Topic: Starting PD
Replies: 2
Views: 5523

Re: Starting PD

Thank you John. I started CAPD on the 28th February and it all seemed to be going well until I noticed a hard swelling in my stomach. This turned out to be a leak of fluid so I've had to stop dialysis until this heals. On the plus side , I'm getting a break from exchanges three times a day for a whi...
by igor1974
Tue Feb 27, 2018 9:09 pm
Forum: The KPG Forum
Topic: How long have you had your transplant?
Replies: 15
Views: 24224

Re: How long have you had your transplant?

No secret I'm afraid. Just extreme good fortune. As I was only 11 at the time of the transplant and it never occurred to me to allow it to influence my life choices. I have always exercised, eaten healthily and got on with my life like everyone else. The majority of people I know /knew never even kn...
by igor1974
Sat Feb 24, 2018 8:27 pm
Forum: The KPG Forum
Topic: How long have you had your transplant?
Replies: 15
Views: 24224

Re: How long have you had your transplant?

Thank you Amanda. It was a steady decline. Basically the kidney got past its prime. I certainly feel I've had my money's worth though.
by igor1974
Sat Feb 24, 2018 7:35 pm
Forum: The KPG Forum
Topic: How long have you had your transplant?
Replies: 15
Views: 24224

Re: How long have you had your transplant?

Had mine for 43 years. Sadly it has finally given up the ghost and I have had my first day of training for PD today. Luckily this went well and paracetamol seemed to control the 'drain pain'. I'm now waiting (not so patiently) for kidney number 2 to turn up.
by igor1974
Fri Feb 16, 2018 6:11 pm
Forum: The KPG Forum
Topic: Surprise transplant call
Replies: 1
Views: 4002

Re: Surprise transplant call

That's wonderful news. Wishing you a speedy recovery and a healthy future. It's good to hear the call does eventually happen.
by igor1974
Sat Jan 27, 2018 10:36 am
Forum: The KPG Forum
Topic: Starting PD
Replies: 2
Views: 5523

Starting PD

I'm due to have a PD catheter fitted in a couple of weeks.

Any advise, hints or warnings from experienced PDer's please?
by igor1974
Thu Dec 21, 2017 9:19 pm
Forum: The KPG Forum
Topic: transplant call
Replies: 6
Views: 12746

Re: transplant call

Did you get the transplant Rik or did you miss it?
by igor1974
Tue Nov 21, 2017 7:28 pm
Forum: The KPG Forum
Topic: transplant call
Replies: 6
Views: 12746

Re: transplant call

Good to hear you're doing so well Sue.
by igor1974
Sun Nov 19, 2017 5:34 pm
Forum: The KPG Forum
Topic: transplant call
Replies: 6
Views: 12746

transplant call

Looking back at posts from those of you lucky enough to have received a deceased donor kidney, it seems that most people get 'the call' in the early hours of the morning? Is this generally the case?

Ruth