Search found 29 matches

by Zennor
Tue Feb 14, 2017 6:09 pm
Forum: The KPG Forum
Topic: Homeopathy to boost immune system pre-dialysis?
Replies: 15
Views: 48552

Re: Homeopathy to boost immune system pre-dialysis?

I appreciate the desire to clutch at any hope but homeopathy is complete junk based on superstition, pseudo-scientific babble and fake research. There is not a single properly conducted trial that has found any beneficial effect and that is because homeopathy is total tosh to start with. As for Chin...
by Zennor
Fri Dec 16, 2016 12:07 pm
Forum: The KPG Forum
Topic: Very frequent urination after tx
Replies: 21
Views: 84102

Re: Very frequent urination after tx

Hi, Just seen this. By the time I got a TX my bladder must have shrunk to the size of a walnut. Not only a very small capacity, but with no give. My recollection is that it took several months to get to any sort of normality. Apart from maybe a prostate check (which I am guessing would have been par...
by Zennor
Mon Dec 05, 2016 5:04 pm
Forum: The KPG Forum
Topic: Travel Insurance Cost
Replies: 2
Views: 9246

Travel Insurance Cost

Hi Just got off the phone organising travel cover with insureandgo.com. I declared my kidney tx (>5 years) and Type 2 Diabetes (thanks Tacro) and have paid £224.50 for annual multi trip worldwide cover - that includes £102.52 for the declared medical conditions. Seemed pretty good to me particularly...
by Zennor
Wed Nov 23, 2016 2:53 pm
Forum: The KPG Forum
Topic: New lady
Replies: 6
Views: 16950

Re: New lady

Hi Saw your post. I was living in Brighton when I found out that I had PKD following a scan for a kidney stone. I went through all the stages over a 15 year period and was transplanted in January 2009. I agree with the advice already give. My experience of the RSCH kidney unit was all good. One of t...
by Zennor
Wed Mar 16, 2016 11:48 am
Forum: The KPG Forum
Topic: Bone Density.
Replies: 14
Views: 35809

Re: Bone Density.

Hi I had a TX in early 2009 (St Georges) and have never been on steroids. I have had bone density scans ca. every three years - so two so far. My results were at the low end of normal. Mentally I delete the 'at the low end' and translate this to 'results were normal'. This seems to be the same proto...
by Zennor
Thu Jan 07, 2016 3:59 pm
Forum: The KPG Forum
Topic: Stent Removal: different experiences
Replies: 29
Views: 80508

Re: Stent Removal: different experiences

Well this thread brought back memories of six years ago in St Georges . Many a story was told in the post-transplant clinic waiting area about the upcoming stent removals. Strangely it was only the men who joined in. So there I am on on a table in the treatment room, bladder is full, a bit nervous. ...
by Zennor
Mon Mar 09, 2015 3:29 pm
Forum: The KPG Forum
Topic: Travel Insurance
Replies: 1
Views: 7477

Travel Insurance

Hi All, It is that time of year when thoughts turn to holidays and more importantly for us the problem of travel insurance. I have just over three weeks booked for a trip to the US in June. I would welcome advice about who ( and just as importantly who not) I could approach for insurance, I have som...
by Zennor
Tue Jun 03, 2014 2:00 pm
Forum: The KPG Forum
Topic: How long to feel normal after stent removal
Replies: 11
Views: 36165

Re: How long to feel normal after stent removal

Hi I had a stent for five weeks after TX. I was never aware of it and following removal had no sensation whatsoever. I agree this is best checked out. I remember the nephrectomy and transplant did not give me any nerves beforehand, but the stent removal was another matter. I recall looking at the sc...
by Zennor
Tue Jun 03, 2014 1:53 pm
Forum: The KPG Forum
Topic: question for anyone who had kidney removal
Replies: 1
Views: 3629

Re: question for anyone who had kidney removal

Hi, I had 2No 6Kg PKD kidneys removed at the same time. I did think or selling the idea as a new crash diet. For months afterwards sleeping on my side was a problem as everything slopped to one side and I got cramping pains after 10 minutes or so. If I turned over it all slopped the other way. I end...
by Zennor
Tue Nov 26, 2013 12:26 pm
Forum: The KPG Forum
Topic: tacrolimus dosing
Replies: 10
Views: 15609

Re: tacrolimus dosing

Hi I do. I was taking 1mg morning and 1mg evening and the level was a bit high so the team swapped me to 1mg morning and 0.5mg evening. Result - the level was too low. So they swopped my to alternate days 0.5mg and 1mg for the evening dose. The results are spot on now. Creatanine stayed at 99 throug...
by Zennor
Wed Nov 06, 2013 5:19 pm
Forum: The KPG Forum
Topic: Pets after Transplant
Replies: 3
Views: 6977

Re: Pets after Transplant

Hi, I am coming up to 5 years post transplant and fine with no problems. We have two dogs, a cat and some chickens. I was given no advice about them either way, though did read (mostly from the USA) comments about getting rid of animals. I do take normal sort of precautions e.g. hand washing, latex ...
by Zennor
Wed Sep 04, 2013 9:02 am
Forum: The KPG Forum
Topic: Cod liver oil?
Replies: 5
Views: 13714

Re: Cod liver oil?

Hi
Not really a reply, but...

I was give the OK by the renal unit to take Omega 3 capsules.

Now I am one of those non-vegetarians that do eat fish but not anything with legs so that was OK.

Does anyone know of an Omega 3 capsule that doesn't have beef gelatine in the capsule?

Nick
by Zennor
Mon Jul 01, 2013 5:17 pm
Forum: The KPG Forum
Topic: Nephrectomy through the back?
Replies: 4
Views: 6415

Re: Nephrectomy through the back?

Hi Well I had 30cm kidneys that came out through the front in a bloody great incision - none of that keyhole stuff, I got the full french windows. I have a recollection that an ex work colleagures girl friend had a nephrectomy where they put a bag round the kidney and macerated it in situ to keep th...
by Zennor
Fri Jun 07, 2013 10:22 am
Forum: The KPG Forum
Topic: Help Post transplant experience work
Replies: 4
Views: 8186

Re: Help Post transplant experience work

Hi, Sorry about your problems and I can't really help. The only thing I do know a bit about is private health care, sickness insurance, critical health cover, mortgage protection etc, you name it I had the lot. When I went into HD and subsequent TX I got nothing. Well not strictly true, my claim on ...
by Zennor
Wed Nov 28, 2012 8:39 pm
Forum: The KPG Forum
Topic: BTS Ethics Symposium
Replies: 7
Views: 9624

Re: BTS Ethics Symposium

Hi,

I have always been more interested in the ethics than the medicine so am looking forward to it.

We might even have trains that go east of Exeter by then.