Search found 10 matches

by gnarledcrayon
Fri Apr 29, 2016 10:12 am
Forum: The KPG Forum
Topic: Bilateral Renal Parenchymal Disease
Replies: 11
Views: 26818

Re: Bilateral Renal Parenchymal Disease

It just means I'm surprised. Since my kidney problem is 'only' related to protein in the urine, my levels of creatinine are very low compared to yours - in fact, mostly in the 'normal' reference values.
by gnarledcrayon
Fri Apr 29, 2016 9:52 am
Forum: The KPG Forum
Topic: Bilateral Renal Parenchymal Disease
Replies: 11
Views: 26818

Re: Bilateral Renal Parenchymal Disease

yeh wrote:
gnarledcrayon wrote:
yeh wrote:urine protein 370 is not a lot, just little protein leaking.

unless 370g
my creatinine has veen hopping around 140-180 for about 8-9 years time. miracle!!

:shock: :shock: :shock:
by gnarledcrayon
Fri Apr 29, 2016 9:44 am
Forum: The KPG Forum
Topic: edema around the eyes
Replies: 7
Views: 17374

Re: edema around the eyes

I every evening will have little swollen in my ankle. So I put 2 pillow under my legs to sleep overnight. The next day, my legs are ok. I wonder is it because kidney failure or urine protein problem? Hi yeh, My nephrologists explained to me that when the kidneys leak protein from the blood, the pro...
by gnarledcrayon
Fri Apr 29, 2016 7:45 am
Forum: The KPG Forum
Topic: edema around the eyes
Replies: 7
Views: 17374

Re: edema around the eyes

can anyone please help me how to treat edema around the eyes? what foods to be avoided? or any herbal medicine that i need to take to take them away? please i need ur help thank you -God is good all the time- Hiya lev, There might be other reasons for it, so make sure to mention it (and if it bothe...
by gnarledcrayon
Fri Apr 29, 2016 5:17 am
Forum: The KPG Forum
Topic: Bilateral Renal Parenchymal Disease
Replies: 11
Views: 26818

Re: Bilateral Renal Parenchymal Disease

urine protein 370 is not a lot, just little protein leaking. unless 370g Yep. But I don't think it's 370g per liter... My urine protein is currently 3.19 grams per liter, which is a lot less than the almost 12 grams per liter that I leaked before I started therapy. What's the most you guys have had...
by gnarledcrayon
Wed Apr 27, 2016 9:46 am
Forum: The KPG Forum
Topic: Anyone with Kimura's disease?
Replies: 20
Views: 57828

Re: Anyone with Kimura's disease?

Oh I'm only on 50mg the first week, then 37, 25, the following two weeks, I'm just finishing the 50 week tomorrow.. I'll stay on 12.5 then for four months perhaps tapering after that. The initial high dose is just to try and smash things into order while the tacrolimus levels come up. Do all you gu...
by gnarledcrayon
Wed Apr 27, 2016 9:09 am
Forum: The KPG Forum
Topic: Bone Density.
Replies: 14
Views: 35853

Re: Bone Density.

Yea, in about 2001,my GP noted that i had been on prednisolone for 20 years and asked if i'd had a bone scan. In the preceding three or four years i had broken, my ribs (each side), elbow and little finger. The TX unit had never suggested one, which in hindsight was clearly a mistake. I had one don...
by gnarledcrayon
Wed Apr 27, 2016 8:50 am
Forum: The KPG Forum
Topic: can take enalapil or loosartan with creatinine 205
Replies: 4
Views: 11716

Re: can take enalapil or loosartan with creatinine 205

Hi there, I agree with wagolynn. Talk to your nephrologist about it. I don't know about Loosartan, but I currently take 10 mg enalapril per day, ordered/suggested by my nephrologists (I have nephrotic syndrome caused by membranous glomeruloneprithis). Enalapril does not cure kidney conditions, but l...
by gnarledcrayon
Wed Apr 27, 2016 8:29 am
Forum: The KPG Forum
Topic: What caused your kidney disease?
Replies: 32
Views: 88030

Re: What caused your kidney disease?

Well my kidneys have held up relitivly well despite having Kimuras disease, it's a rare disease that less than one in 10,000,000 people get. It causes many different kinds of kidney damage which seems different in every case, but all kinds like those mentioned above are within its powers. Good new ...
by gnarledcrayon
Tue Apr 26, 2016 9:06 pm
Forum: The KPG Forum
Topic: suggestion... how about introducing ourselves??
Replies: 946
Views: 2282755

Re: suggestion... how about introducing ourselves??

Hiya. I'm 46 yo, male. I have nephrotic syndrome caused by MGN secondary to KD (wich is this rare thing: https://en.m.wikipedia.org/wiki/Kimura%27s_disease ). I was diagnosed with KD about 18 years ago, and it has primarily caused benign tumours on my upper back during the years. Then last year, at ...