Search found 25 matches
- Wed Mar 01, 2023 1:23 pm
- Forum: The KPG Forum
- Topic: End of mask wearing
- Replies: 4
- Views: 6559
End of mask wearing
I attended my renal unit this morning and was informed that from Monday of this week, mask wearing in the unit had been dispensed with! No notice, no consultation, no reason given. And I don’t just mean patients - it includes nurses and doctors too. When I saw a consultant I insisted he wore a mask ...
- Tue Apr 05, 2022 1:44 pm
- Forum: The KPG Forum
- Topic: My Covid experience…so far
- Replies: 5
- Views: 7476
Re: My Covid experience…so far
Following on from this thread and the earlier one about how back to normal people are. Difficulties with the CMDU aside (and actually now that treatment is triggered by an LFT why can't we just contact them direct and they look at the LFT result on line) I wondered if aanyone who had had Covid had s...
- Sat Jan 15, 2022 12:08 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 128136
Re: Vaccines for Covid 19
Glad you had that result Thumps. Bit of a postscript to my experience. My regime has been AZ. AZ followed by Pfizer at beginning October 2021. ThereforeI was just 3 months post that 3rd dose. Have to say I was slightly uneasy at getting the booster at 3 months when the recommended period was previou...
- Wed Jan 12, 2022 8:56 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 128136
Re: Vaccines for Covid 19
Sorry to hear people are having difficulties accessing their 4th or booster dose. No way GPs should plead ignorance as they have all been written to by NHS and I share the frustration regarding renal units, who have also been written to but if anything like mine have taken zero interest in the vacci...
- Wed Nov 03, 2021 6:23 pm
- Forum: The KPG Forum
- Topic: Azathioprine or Mycophenolic acid?
- Replies: 4
- Views: 7009
Re: Azathioprine or Mycophenolic acid?
Thank you so much Chris and Thumps for your encouraging replies. I'm really quite reluctant to change what I have been on for 15 years but I am going to have to do something faced with a declining function. I was warned about the side effects on the skin with Az and given I still do a fair bit of cy...
- Wed Nov 03, 2021 9:37 am
- Forum: The KPG Forum
- Topic: Azathioprine or Mycophenolic acid?
- Replies: 4
- Views: 7009
Azathioprine or Mycophenolic acid?
Looking to get some real world experience from anyone taking these meds. It is 15 years since my transplant and over the last few years my function has been declining - Creatinine now around 250. I had a biopsy a few weeks ago to determine what is going on and the consultants think that the decline ...
- Fri Mar 19, 2021 11:00 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 128136
Re: Vaccines for Covid 19
Spotted this online today. Study in the USA of SOT patients who have had one dose of Pfizer or Moderna vaccine and antibody response.
https://twitter.com/mkwillicombe/status ... 9475227656
Results are not great.
https://twitter.com/mkwillicombe/status ... 9475227656
Results are not great.
- Thu Mar 18, 2021 5:09 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 128136
Re: Vaccines for Covid 19
Interesting to read about people's experiences and views and that the emphasis is now moving to efficacy - in other words to what extent are we protected. That leads onto the question of what we would feel comfortable doing. My take on this is that there are general studies taking place such as the ...
- Fri Feb 12, 2021 4:12 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 128136
Re: Vaccines for Covid 19
Got mine last week - AZ.
Don't know if it's related but I've developed an area of shingles. Had been feeling crap for a few weeks but since the spots/blisters appeared felt fine.
Don't know if it's related but I've developed an area of shingles. Had been feeling crap for a few weeks but since the spots/blisters appeared felt fine.
- Fri Jan 29, 2021 11:23 am
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 128136
Re: Vaccines for Covid 19
Thanks for the replies and glad you have all had your first dose. I know that for flu jabs and pneumonia jabs renal units don't usually get involved but given how long we have all been shielding and the high mortality rate for what they call solid organ transplant patients I think vaccination is eve...
- Sun Jan 24, 2021 3:34 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 128136
Re: Vaccines for Covid 19
Interested to know if those being vaccinated getting it at their renal units?
My renal unit isn't doing them - no reason given - and says GP will contact me. They didn't seem terribly interested TBH.
My renal unit isn't doing them - no reason given - and says GP will contact me. They didn't seem terribly interested TBH.
- Wed Jun 10, 2020 1:48 pm
- Forum: The KPG Forum
- Topic: Coronavirus
- Replies: 124
- Views: 135759
Re: Coronavirus
Agree with Sue and Thumps. In my view you just have to deal with the situation that is in front of you and make your own assessment of the risk involved. In my case I've always kept fit before and after my transplant which I think has helped massively . I took the view early on that if I lost that f...
- Wed May 20, 2020 2:17 pm
- Forum: The KPG Forum
- Topic: Coronavirus
- Replies: 124
- Views: 135759
Re: Coronavirus
This looks a very good idea. Mobile renal phlebotomy service from Kings College Hospital.
More units should do it
https://twitter.com/KateBramham/status/ ... 1428293632
More units should do it
https://twitter.com/KateBramham/status/ ... 1428293632
- Tue Mar 31, 2020 1:15 pm
- Forum: The KPG Forum
- Topic: Coronavirus
- Replies: 124
- Views: 135759
Re: Coronavirus
Yes, I was reading it earlier. I actually started isolating/shielding last Monday on the assumption that I was in the group and told my workplace I’d be off for 12-weeks. They asked for a copy of the letter when it arrived which is why I started chasing it today. Very surprised to be told I wasn’t ...
- Sun Mar 22, 2020 10:51 pm
- Forum: The KPG Forum
- Topic: Coronavirus
- Replies: 124
- Views: 135759
Re: Coronavirus
The latest advice which seems to go further than the NHS advice, references the NHS letter that is going to be sent out this week and strongly suggests that those in the groups listed as extremely vunerable, which includes transplant patients, should not go out for 12 weeks: " You are strongly ...