Search found 19 matches

by morzov
Fri Mar 19, 2021 11:00 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 8260

Re: Vaccines for Covid 19

Spotted this online today. Study in the USA of SOT patients who have had one dose of Pfizer or Moderna vaccine and antibody response.

https://twitter.com/mkwillicombe/status ... 9475227656

Results are not great.
by morzov
Thu Mar 18, 2021 5:09 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 8260

Re: Vaccines for Covid 19

Interesting to read about people's experiences and views and that the emphasis is now moving to efficacy - in other words to what extent are we protected. That leads onto the question of what we would feel comfortable doing. My take on this is that there are general studies taking place such as the ...
by morzov
Fri Feb 12, 2021 4:12 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 8260

Re: Vaccines for Covid 19

Got mine last week - AZ.

Don't know if it's related but I've developed an area of shingles. Had been feeling crap for a few weeks but since the spots/blisters appeared felt fine.
by morzov
Fri Jan 29, 2021 11:23 am
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 8260

Re: Vaccines for Covid 19

Thanks for the replies and glad you have all had your first dose. I know that for flu jabs and pneumonia jabs renal units don't usually get involved but given how long we have all been shielding and the high mortality rate for what they call solid organ transplant patients I think vaccination is eve...
by morzov
Sun Jan 24, 2021 3:34 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 8260

Re: Vaccines for Covid 19

Interested to know if those being vaccinated getting it at their renal units?

My renal unit isn't doing them - no reason given - and says GP will contact me. They didn't seem terribly interested TBH.
by morzov
Wed Jun 10, 2020 1:48 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 41159

Re: Coronavirus

Agree with Sue and Thumps. In my view you just have to deal with the situation that is in front of you and make your own assessment of the risk involved. In my case I've always kept fit before and after my transplant which I think has helped massively . I took the view early on that if I lost that f...
by morzov
Wed May 20, 2020 2:17 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 41159

Re: Coronavirus

This looks a very good idea. Mobile renal phlebotomy service from Kings College Hospital.

More units should do it

https://twitter.com/KateBramham/status/ ... 1428293632
by morzov
Tue Mar 31, 2020 1:15 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 41159

Re: Coronavirus

Yes, I was reading it earlier. I actually started isolating/shielding last Monday on the assumption that I was in the group and told my workplace I’d be off for 12-weeks. They asked for a copy of the letter when it arrived which is why I started chasing it today. Very surprised to be told I wasn’t ...
by morzov
Sun Mar 22, 2020 10:51 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 41159

Re: Coronavirus

The latest advice which seems to go further than the NHS advice, references the NHS letter that is going to be sent out this week and strongly suggests that those in the groups listed as extremely vunerable, which includes transplant patients, should not go out for 12 weeks: " You are strongly advis...
by morzov
Fri Jan 17, 2020 4:55 pm
Forum: The KPG Forum
Topic: Conversion from Tacrolimus to MMF
Replies: 6
Views: 9289

Re: Conversion from Tacrolimus to MMF

Thanks Rik I have of course discussed this extensively with my consultant but I posted to get some real world experience. I wanted to see who else had done this and how it had worked out.I also wanted to see if some people had not done this but had continued with good function anyway by staying on T...
by morzov
Fri Jan 17, 2020 2:31 pm
Forum: The KPG Forum
Topic: Conversion from Tacrolimus to MMF
Replies: 6
Views: 9289

Re: Conversion from Tacrolimus to MMF

Thanks for the replies. Rik - as I read your post you are not being taken off tacrolimus, rather you are staying on it and MMF is being used instead of pred? Apologies but I probably didn't make clear in my case my Tacrolimus is being replaced by MMF and I'm staying on pred 5 mg per day so that seem...
by morzov
Sat Jan 11, 2020 6:59 pm
Forum: The KPG Forum
Topic: Conversion from Tacrolimus to MMF
Replies: 6
Views: 9289

Re: Conversion from Tacrolimus to MMF

Was expecting some answers but presumably no one who has read the post has had this experience.

Thing is I need to make a decision on this fairly quickly so maybe I should rephrase the question and ask if anyone is aware of this change from tacrolimus to MMF?

Thanks in advance.
by morzov
Tue Jan 07, 2020 11:47 am
Forum: The KPG Forum
Topic: Conversion from Tacrolimus to MMF
Replies: 6
Views: 9289

Conversion from Tacrolimus to MMF

Hello All I am 13 years post transplant (live donation from my dear wife) and my results have been very stable up until recently when my creatinine has begun to creep up from 130 to 170. My consultant has recommended that I need to transition from tacrolimus (I am currently on a fairly low dose - 1m...
by morzov
Fri Jan 13, 2012 2:38 pm
Forum: The KPG Forum
Topic: Caution about CT Scans
Replies: 6
Views: 6224

Caution about CT Scans

Don't know if this has been posted before but I thought it worth mentioning. I am a transplant patient and recently had a CT scan of my coronary arteries. My renal consultant was concerned that the consultant doing the scan hadn't checked first about my kidney function because the contrast fluid use...
by morzov
Wed Mar 09, 2011 4:23 pm
Forum: The KPG Forum
Topic: Tacrolimus - once or twice a day
Replies: 4
Views: 3882

Tacrolimus - once or twice a day

HAS anyone on here been switched from twice daily dose of Tacrolimus (Prograf)to the once daily prolonged release dose (Advagraf).In fact given that my own unit has never mentioned it I wondered if many people had heard of it. I've read a few articles recently suggesting that, at least in stable kid...