Kidney Patient Guide

Having recently had a transplant, I thought it might be useful to others to recount my experiences, so here goes... I was diagnosed with igA nephropathy about 12 years ago and my kidney function has been gradually declining ever since. By December, I was still pre-dialysis, but with an eGFR of 11. I...

Thanks for the replies.

Living in East Anglia we tend to think we are a long way from civilization...and then someone from Australia puts it into context

Best wishes

Stephen

Thanks, again. I doubt if they'll pay for a taxi, though. A 70 mile trip is going to be costly and I imagine taxi drivers are very reluctant to do it because they have to drive back empty. So I'm working on the assumption that I (or my wife) will have to drive.

Cheers

Stephen

Many thanks for the replies and the reassurance!

I'll try not to worry too much

Best wishes

Stephen

Hi all I've been given the good news that I've been put on the transplant list, but have not really received much other information (so this forum has been invaluable!) and I am wondering what changes I need to make to my daily life to ensure that I would be able to get to the hospital quickly, if I...

Some consultants do not like the patients having all the blood results for many reasons. Blood results can be dangerous in the wrong hands :-) My GP got accidentally copied in on my results. He immediately phoned me at home and told me I should go to A&E straight away. I reluctantly did so and,...

As you say, people don't know what to say, to the outside observer you will not look very ill. Unfortunately, I have not found an answer to this problem, so I avoid talking to people about it. My standard answer to questions about my health is, "apart from feeling Prince Charlse'd, (knackered)...

Many thanks for these additional insights. I'm not sure our stairs would cope with half a ton of boxes being moved up and down them regularly. The garage option definitely sounds the best. I'd better start clearing all the old junk out of the garage!

Cheers

Steve

Many thanks for the replies and all the helpful info. Grey, yes I'll PM you separately, if that's OK. Sue, I was interested to hear that the boxes could be stored in a garage, as this would be quite convenient. Is there any problem about the temperature that the stuff is stored at? It must get very ...

Dear all I'm new here, having looked around the internet for information and finally found this excellent forum. I was diagnosed with IgaN a few years ago and have been having regular blood tests and visits to a nephrologist, ever since. However, apart from taking various tablets (eg for blood press...