Search found 76 matches

by Dibs
Thu Oct 26, 2017 2:34 pm
Forum: The KPG Forum
Topic: Thoughts please
Replies: 3
Views: 9533

Re: Thoughts please

Hi Mart. I'm only eight months post transplant, but I've never been below 135 and that was just seven weeks post-op. You've only fluctuated 20% and so I guess they are being cautious. I'm on three weekly tests and can fluctuate 20%. One thing that caught my eye was that you drink 4-6l a day. I was t...
by Dibs
Fri Sep 01, 2017 12:25 pm
Forum: The KPG Forum
Topic: Transplant booked!!!
Replies: 2
Views: 7314

Re: Transplant booked!!!

Yes it is difficult to plan. I was discharged five days after transplant. After a few days at home, I was getting bored and was able to do some work remotely on the pc. My work is office-based and the office weren't happy with me doing that, but I was only doing some 'housework' activities to give m...
by Dibs
Thu Aug 10, 2017 8:51 am
Forum: The KPG Forum
Topic: Lercanidipine
Replies: 3
Views: 9047

Re: Lercanidipine

Hello DocRoc. I was also prescribed Lercandipine pre-transplant when my eGFR was much lower. Not aware of it causing any issues.
by Dibs
Sun Jul 23, 2017 9:03 pm
Forum: The KPG Forum
Topic: How to lower creatinine level?
Replies: 2
Views: 7959

Re: How to lower creatinine level?

Ensuring he is drinking 2-3 litres of water a day is what I am always being told
by Dibs
Thu May 25, 2017 12:26 pm
Forum: The KPG Forum
Topic: Holidays on PD
Replies: 17
Views: 55081

Re: Holidays on PD

Hi Maggie. I was with Baxters and didn't use a travel agent. I was on APD with a machine at home, but would use the manual bags when away. I would pick a relatively popular area that had direct flights with short transfers to minimise travel time and that Baxters could deliver to. Then I emailed a f...
by Dibs
Tue May 02, 2017 3:46 pm
Forum: The KPG Forum
Topic: Securing PD Catheter
Replies: 6
Views: 20933

Re: Securing PD Catheter

I tried it in various positions - side, front, horizontal, vertical, clockwise, anti-clockwise. My nurse said to use whatever is comfortable. I found that I would occasionally bang it with my arm when it was on my side and found the mepore stuck better when it was horizontal on my belly.
by Dibs
Tue Apr 25, 2017 6:22 pm
Forum: The KPG Forum
Topic: Spam/Scam message questionnaire
Replies: 9
Views: 31348

Re: Spam/Scam message questionnaire

nothing here either
by Dibs
Wed Mar 29, 2017 7:45 pm
Forum: The KPG Forum
Topic: Which transplant centre, Plymouth or Bristol? Thoughts pls.
Replies: 6
Views: 15915

Re: Which transplant centre, Plymouth or Bristol? Thoughts p

Hi Dixie. I had a transplant in Southmead on 20/2. I cannot fault the staff and enjoyed their company. The building is new, although some of the plumbing needed attention, there was a lack of remote controls for the tellies and food was not good. I was in and out in five days, so everything went smo...
by Dibs
Sat Mar 25, 2017 10:45 am
Forum: The KPG Forum
Topic: Night Sweats
Replies: 8
Views: 38518

Re: Night Sweats

I've been getting these post transplant. I've not been getting much sleep as well. Never used to sweat much before, so not used to smelling sweaty. Suspect the steroids might be to blame.
by Dibs
Fri Mar 17, 2017 8:30 pm
Forum: The KPG Forum
Topic: transplanted
Replies: 6
Views: 15483

Re: transplanted

Thanks for the support. Since my post, the blood tests have fluctuated a little but not shown any overall improvement. The medical team have thought about an ultrasound scan, but decided against it for now. My Tacro readings have meant a slight reduction in that drug. I'm not in any pain though and ...
by Dibs
Wed Mar 08, 2017 3:36 pm
Forum: The KPG Forum
Topic: Top Tips for those going in to have a tx
Replies: 62
Views: 489006

Re: Top Tips for those going in to have a tx

One thing that caught me out was that I was asked to take a day's worth of dialysis fluids etc as the transplant hospital are with fresnius and I was with baxters. That more than doubled my baggage and made using public transport difficult.
by Dibs
Wed Mar 08, 2017 3:31 pm
Forum: The KPG Forum
Topic: transplanted
Replies: 6
Views: 15483

transplanted

Well it's happened. I telephoned Southmead on Monday 20/2 as I was due to see them for the first time since I went on the list two years ago. The only time I have spoken to them in that time was to order more blood sample tubes. They said it wasn't worth discussing that as they might have a kidney f...
by Dibs
Fri Jan 13, 2017 10:41 am
Forum: The KPG Forum
Topic: Very low initial drain on APD
Replies: 9
Views: 22901

Re: Very low initial drain on APD

On my Baxters machine there is an I-Drain volume alarm. It was set by my nurse initially. I would ask your nurse/unit if it needs to be set.
by Dibs
Fri Jan 13, 2017 10:19 am
Forum: The KPG Forum
Topic: Very low initial drain on APD
Replies: 9
Views: 22901

Re: Very low initial drain on APD

Having only drained 7ml, didn't it alarm before the fill?

I struggled with my initial drains when I started, but not to that extent. When it alarms, I have tried all sorts of peculiar positions as well as rocking myself to try and move things.
by Dibs
Thu Jan 12, 2017 2:48 pm
Forum: The KPG Forum
Topic: Very low initial drain on APD
Replies: 9
Views: 22901

Re: Very low initial drain on APD

Hi.
I tend to stand for the initial drain and lie down for the rest. Has he tried different positions for the initial drain?