Kidney Patient Guide

Thanks for your help, I wasn't offered the chance of a reduction but I will check that with my consultant.

Hi everyone I have been lucky enough to have had a transplant over 6 years ago and remain ok (fingers crossed). But for the last several months my fistula arm feels very heavy and aches like toothache day & night. I saw very nice doc at the QE yesterday who scanned my arm and said my arm is pate...

Hi I had reflux as a child too, which left one kidney damaged. Like you I went on to have two babies which reduced my GFR on both occasions. But, I managed to carry on , with many visits to Renal Clinics , until I reached 50 before having to have dialysis. After 5 years or so I was lucky enough to h...

Hi I am 12 weeks post tx and generally doing ok. Had Hydro Nephritis a couple of weeks back which required 11 days in hospital & another Nehprostomy (drain & small bag from kidney). Later removed thank goodness. More tests for narrowing of Renal Artery before coming home. But, my biggest wor...

Thanks everyone for your good wishes . Jan4alan please let me know when you are going in to Q E I would be very happy to give you some tips xxx

Hi everyone I got the call late on the 9th December, wasn't sure if it was a scam at first because I had given up a bit after 5 yrs 8 months on the list. So you see for all of you waiting out there it will happen. :) The op went ok but there was some trouble with a small ureter so I had a Nephrostom...

Thanks for that Kipper. To be fair my dietician is very good she has made an appointment for me to see the Renal Consultant and is trying to get me an alternative to Fosrenol arranged, but I like to ask you guys for help too as this forum has been a great help to me in the past. Cheers x

Hi everyone, I'm looking for the impossible I think :? I have been on Haemodialysis for almost 5 years now and struggle with constipation due to the fluid restriction and lack of fresh fruit e.t.c. Does anyone else suffer too and if so any suggestions how to improve the situation within Renal Guidel...

Hi it's been great to read your posts ! I hope you continue getting better and better.As someone who is coming up to 5 years on the waiting list it gives me hope and makes me smile. Best wishes

Thanks Rik, didn't mean to be sexist by the way ,interesting info will talk about it with my GP hopefully he will listen cheers x

Hi everyone here is a problem that has been weighing heavy on my mind. I have been suffering with stress incontinence for some time. I have been down the pelvic floor exercise route no go ! :cry: I am seriously considering surgery but wonder if it will be a problem with regard to transplant , and wh...

Hi all, I'm looking for help from the people I trust. I am suffering from Cystitis most of the time :cry: I have been to see my G.P. and am back on Amoxicillin . As I am on dialysis the 'drink plenty' advice is a non-starter lol, if Antibiotics don't work apparently we can try Oxybutilin (not sure a...

Hi I'm 55 years old officially. Sometimes I feel a lot older and sometimes a little younger

I love the forum because I can feel normal on here, and safe.
Helpful replies have got me through some dark days and I always feel happier when i have been on here.

Hi Carol don't worry it will not be as bad as you expect! Just try to listen to what they are telling you & be sure to let them know if you are not feeling well. Will be thinking about you lots of luv xxx