Kidney Patient Guide

Thanks guy and especially jan4alan, the ride is going to be this time next year, we still need to get definite dates sorted but we need to make sure we can get time off work etc. We are looking at a minimum of 85 miles off road over the 7 days which doesn't sound like much but it is over VERY hilly ...

*bump* anybody interested in helping out fellow kidney patients?? 99 views and no reply or increase in the facebook page views or sponsorship on the just giving page? c'mon guys lets get these guys supported to help sork out PKD!

Hello everyone. I have not been on here for some time, I just tend to lurk on here. For those of you that know, my transplant that i got last year is chugging along nicely to the point where my colleague and I have decided to ride the 7Stanes in 7Days challenge in the Scottish borders next year. Thi...

I dialysed with a tunnelled neckline for 8 months due to the delay in getting a fistula put in. I got sedated for my insertion so don't remember much at all (just the way I like it!) I found it inconvenient but once it has settled down, I hardly noticed it really. the main problem I had was that my ...

Check out my Ticker!!!! 6 months already, feeling good pred down to 7.5 mg a day so lost that 'turbo boost!'. GFR at Round about 60%. I have been doing lots of miles walking the dog, cycling a bit and even playing squash! Although I hurt my wrist so that's off the cards for a while!

Have PM'd you but i was back at work after 8 weeks but then I drive a desk for a living. You will find week on week you can do more and more and you will find your own limits. I am now 4 months post op and while I am still aware of the wound, I can pretty much do what I want now but everyone is diff...

Great to hear Dave, sounds like a cracking match as my creatinine has averaged about 120 which is still fantastic compared to 1200 at its peak. When the energy starts to kick take it easy as you can quite easily overdo it. when you start being able to use the energy you will be amazed at what you ca...

I had my PD catheter in for a year before it was used and tbh i was glad i did as all complications had sorted themsleves out well before them so dialysys was pretty much plain sailing, and when the PD training comes it is one less thing to get his head around and he will have a good hygiene routine...

I am with you on that one, I got transplanted in january and my company sick pay ran out last year, I tried to get the company to review thier policy to extend their sick pay with no joy. I now have the prospect of getting just SSP this month (£79 a week) yet still being expected to pay all of the ...

Hello fella,I am also a unique PKD sufferer and the only offers of donation came from a school friend that I lost touch with for 16 years and my wifes friend whcih really humbled me. The whole experience has made me realise that perhaps I was putting energy into relationships with people that wasn't...

When i was in getting my tx, they had to turn someone off my unit away as they had no I.C, beds due to the flu outbreaks. Its frustrating but better to be safe than sorry. The staff on 6a are amazing, watch out for Trish as she will have you laughing your stitches out!

That's about the size of it but only twice a week thankfully!

Don't worry, none taken and I have answered to worse!

Take your own toilet paper!! The Freeman in Newcastle has paper made out of glass!

Hi, yes i am under DR Paterson at James Cook, I am there today as it happens, I have plenty of time on my hands at the mo so a meet up would be good. I am sore more than in pain, I get the clips taken out of my wound today so that should make things a bit more comfortable, i am only 11 days post tra...