Search found 3435 matches

by JMan
Tue Jul 13, 2021 10:35 am
Forum: The KPG Forum
Topic: Dialysis?
Replies: 20
Views: 4204

Re: Dialysis?

I had my second IV iron three weeks ago, rather later than the 6 monthly they suggested and probably only then because I asked for it - suggesting my energy level was low and the monthly Aranesp 80 were not really helping. This time they did the IV a little slower the result in energy was less imme...
by JMan
Mon Jul 05, 2021 10:27 pm
Forum: The KPG Forum
Topic: Dialysis?
Replies: 20
Views: 4204

Re: Dialysis?

Hi Harry You can get a good idea on this website on the different types of dialysis See the animations https://www.kidneypatientguide.org.uk/treatment.html The link below is from an American site, but can help you get an idea of how to choose the dialysis you want to fit your life. Your consultant w...
by JMan
Mon Jul 05, 2021 10:20 pm
Forum: The KPG Forum
Topic: I don’t know how to feel
Replies: 2
Views: 475

Re: I don’t know how to feel

I found this forum because I’m honestly scared. I just feel exhausted that I have to be going through this at 22. I don’t know where to go from here and what questions to ask my doctor. I have an anxiety of death and this has been such a weight on my shoulders. I need hope... help.. Nancy Please do...
by JMan
Mon Jul 05, 2021 10:17 pm
Forum: The KPG Forum
Topic: Pfizer 2
Replies: 3
Views: 1224

Re: Pfizer 2

Thanks. Well a blip in my Hb lately hasn't helped :)

last week in May I injured my hand, still not recovered. It sucks. Really bad sprain! :(
by JMan
Mon Jul 05, 2021 10:15 pm
Forum: The KPG Forum
Topic: Water Softener
Replies: 6
Views: 9832

Re: Water Softener

You'd need to put the water through an RO & filtration as well to get pure water. A water softener Reject water from a dialysis system is perfectly safe for drinking and irrigation. Maybe not feasible on a domestic scale, but in hospitals it makes sense. This is one reason why most heamodialysis sys...
by JMan
Thu Apr 29, 2021 4:44 pm
Forum: The KPG Forum
Topic: Pfizer 2
Replies: 3
Views: 1224

Pfizer 2

Second Pfizer jab yesterday. Def affecting energy and mental health. I'm missing my other special 'non kidney friends', hating the garden,which usually gives me some pleasure, and generally feeling low. Don't you just love this fecking covid thing. Other news, the RSM webinars on Climate & Health ar...
by JMan
Sat Apr 10, 2021 12:51 pm
Forum: The KPG Forum
Topic: Dialysis in Holland
Replies: 2
Views: 811

Re: Dialysis in Holland

Thanks for that. Not going anywhere outside the country for a while.

But its good to get feedback:)

J
by JMan
Sun Mar 28, 2021 8:58 am
Forum: The KPG Forum
Topic: CKD - a book you found helpful?
Replies: 4
Views: 1113

Re: CKD - a book you found helpful?

I'm 74 with high blood pressure, which is controlled with medication. Last year, my eGFR was 80, last week it was 58. So, I'm having further blood tests, urine test and, possibly, a scan as I have kidney stones. I understand that if CKD is confirmed, it will be my GP who will monitor me. As I under...
by JMan
Thu Mar 25, 2021 8:26 am
Forum: The KPG Forum
Topic: Dialysis in Holland
Replies: 2
Views: 811

Dialysis in Holland

Dialysis in Holland?

Has anyone dialysed in the Netherlands or on German Dutch border?

It's been a long time since I've been back to my mums home country, and its something I'd like to do. Hell, with England as it is, I'd consider emigrating if I could! LOL
by JMan
Mon Mar 01, 2021 5:00 pm
Forum: The KPG Forum
Topic: Scared
Replies: 5
Views: 1551

Re: Scared

Hi @megs There's some excellent support on here, and from the main patient charities https://www.kidneycareuk.org/get-support/ https://www.kidney.org.uk You can try and manage your BP with diet (salt is a real factor) and general health. I know with diabetes its tricky, but it will make it better if...
by JMan
Mon Mar 01, 2021 4:54 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 8308

Re: Vaccines for Covid 19

I had mine Pfizer at the beginning of March. Bit weirder and more tired than normal for a week and a tender arm. Lynn had hers on the 25th went to bed for a long snooze after lunch the same day. That was the Astra Zeneca. Continuing o shield as per the most recent letters. The variants are strong (b...
by JMan
Fri Jan 29, 2021 4:48 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 8308

Re: Vaccines for Covid 19

Some units are doing them 'in unit' (friends have had them) Friend. Non renal has had one and had flu like symptoms and a sore arm for a couple of days. Probably something to do with Trust decisions more than anything. Thats the issue with semi privatisation. Worth looking at the Webinars/NKF/KCUK a...
by JMan
Tue Dec 15, 2020 9:11 pm
Forum: The KPG Forum
Topic: Hey guys new member Kelly
Replies: 2
Views: 1819

Re: Hey guys new member Kelly

Hi Kelly Really sorry no ones replied to your post. Isolation is unfortunately not uncommon. Thankfully there's this site and some excellent charities such as Kidney Care UK to offer support in many ways. https://www.kidneycareuk.org/get-support/ Don't be afraid to give em a call as they offer couns...
by JMan
Sat Nov 14, 2020 1:53 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 41236

Re: Coronavirus

Got both the Gov and LA letter a few days ago. I live in a high peak area but low case 'ward'. Still scary. It suggests registering again https://www.gov.uk/coronavirus-shielding-support To be honest the 'local help' phonically were OK, my partner who has MS got nothing, and the food parcels were en...
by JMan
Sat Nov 14, 2020 11:24 am
Forum: The KPG Forum
Topic: Hope Week - RSN USA
Replies: 0
Views: 2706

Hope Week - RSN USA

This may be of interest to some. The Renal Support Network, a US patient led charity hosts Hope Week , ending today. The last webinar is on today https://www.rsnhope.org Even if your not in the USA I've found it interesting. Starts about 6 PM GMT (2PM Pacific) The last session is on Children and Par...