Search found 3465 matches

by JMan
Wed Mar 27, 2024 9:52 am
Forum: The KPG Forum
Topic: Patient Sustainability Poster
Replies: 0
Views: 14

Patient Sustainability Poster

Any staff/patients got any insight on this. Has your unit department given advice on sustainability or produced a leaflet or poster? https://networks.sustainablehealthcare.org.uk/topics/patient-information-leaflet-education-pack-sustainable-kidney-care This has come up on the Centre for Sustainable ...
by JMan
Sun Mar 10, 2024 6:08 pm
Forum: The KPG Forum
Topic: End of the analogue landline
Replies: 1
Views: 1677

End of the analogue landline

https://www.ofcom.org.uk/phones-telecom ... line-calls

Some people still live in mobile white spots with very little signal, or rely on landlines for emergency call systems

Heres what you need to know
by JMan
Tue Feb 27, 2024 7:05 pm
Forum: The KPG Forum
Topic: Sensible Questions to ask when booking UK dialysis
Replies: 0
Views: 344

Sensible Questions to ask when booking UK dialysis

Do they provide snacks/Food/Tea/Coffee. Its the twilight shift so would expect to bring my own food. Do I need to bring of the regular items for dialysis such as Heparin, Videne, and own needles. A good think I queried this, as I'm allergic to Tinzaparin, don't use chloraprep, and most some units do...
by JMan
Fri Feb 23, 2024 5:53 pm
Forum: The KPG Forum
Topic: A flying visit to London in March
Replies: 1
Views: 332

A flying visit to London in March

Hi all, Got a couple of sessions booked in St Pancras next month., heading down on the 4th and nesting in Camden! If I bump into anyone its a bonus, otherwise I'll feel like an alien in London probably.. Its been a while! Freeish on the 6th and 7th. I'm doing the twilight shift 5th & 7th and at ...
by JMan
Sun Feb 11, 2024 8:18 am
Forum: The KPG Forum
Topic: Much to think about
Replies: 3
Views: 395

Much to think about

Well my last clinic was different for sure. Consultant hinted at possibility or to consider double transplant. (actually I'd need 3 ops) heart, kidney and sorting out the bladder/uterus problem. Not something to consider lightly even if it was possible. Its just thoughts in the ether, would involve ...
by JMan
Tue Dec 19, 2023 7:12 pm
Forum: The KPG Forum
Topic: Merry Christmas
Replies: 3
Views: 4696

Merry Christmas

Merry Christmas, Seasonal Salutations.

Wishing everyone a good Yule, Solstice, however you celebrate, or not.

Love to you all

JMan
by JMan
Fri Oct 13, 2023 2:04 pm
Forum: The KPG Forum
Topic: Blood pressure drugs - what are you taking?
Replies: 3
Views: 8081

Re: Blood pressure drugs - what are you taking?

I've been on various things for transplants. Because my BP is low they tried to get me on Ivabradine a 'funny current' blocker to maintain my remaining heart function (although it didn't seem to bring it up it. Basically turned me into a zombie!
by JMan
Sun Sep 17, 2023 5:36 pm
Forum: The KPG Forum
Topic: Covid continues to loiter
Replies: 2
Views: 7539

Covid continues to loiter

https://www.theguardian.com/world/2023/ ... a-suggests

https://www.bbc.co.uk/news/health-66461727

So it seems a couple of sneaky variants about and booster/autumn jabs have been brought forward to September.
by JMan
Sat Sep 16, 2023 4:59 pm
Forum: The KPG Forum
Topic: Ticky Ticker and ReSPECT form
Replies: 3
Views: 8507

Re: Ticky Ticker and ReSPECT form

https://www.resus.org.uk/respect#:~:text=The%20ReSPECT%20process%20can%20be,sudden%20deterioration%20or%20cardiac%20arrest. welcome to the iffy heart club!! hope you're ok Jman.. the ReSPECT form is new to me too.. apparently it supercedes the DNAR form Mentally not OK, day to day as long as my Hb ...
by JMan
Thu Aug 24, 2023 6:12 pm
Forum: The KPG Forum
Topic: anybody young people with ckd? reassurance?
Replies: 5
Views: 8808

Re: anybody young people with ckd? reassurance?

Hi I've had CKD most of my life and my 20's and 30's were the hardest. You might want to check out https://www.facebook.com/groups/524969824300628/ You might also want to check out the Young Adult Group from Kidney Care UK.. https://www.kidneycareuk.org/get-support/young-adult-kidney-group-yakg/ Get...
by JMan
Thu Aug 24, 2023 6:02 pm
Forum: The KPG Forum
Topic: Claiming benefits
Replies: 6
Views: 11931

Re: Claiming benefits

Hi Oldboy.. You need to give either Kidney Care UK or the National Kidney Federation (who runs a helpline) a call. Its a Freephone number during office hours https://www.kidney.org.uk/Pages/Category/online-help-resources They can help and direct you and are experienced on info specific to those on d...
by JMan
Thu Aug 24, 2023 5:44 pm
Forum: The KPG Forum
Topic: Ticky Ticker and ReSPECT form
Replies: 3
Views: 8507

Ticky Ticker and ReSPECT form

Well my heart is.. Well I dunno, damage has been going on for a while..

Trying to kick medics etc into action to see a Super Specialist in Brum.

On other news I've been told I should carry my ReSPECT document at all times.

New to me.
by JMan
Thu Aug 24, 2023 5:43 pm
Forum: The KPG Forum
Topic: "Patients Know Best"
Replies: 8
Views: 16395

Re: "Patients Know Best"

I thankfully exported my entire KPV database before the closure.. But of course it only contains that historical data.. Still useful, and much much easier to refer to.. What insults me is that the founders/creators have been been awarded for what is, a very low quality product and supposedly a 'soci...
by JMan
Wed May 31, 2023 8:45 pm
Forum: The KPG Forum
Topic: Lake District watch out!
Replies: 2
Views: 7699

Re: Lake District watch out!

I'll try.
A little dubious. Don't know the unit. I think I was still on PD or transplanted last time I went as a kid.
Also first time I've DAFB since 2018 which wasn't a great experience

Hoping for smooth train travel HAHA and not 'green and scenery overload!' lol
by JMan
Fri May 19, 2023 5:59 pm
Forum: The KPG Forum
Topic: Lake District watch out!
Replies: 2
Views: 7699

Lake District watch out!

Getting a little break to the Lake District next month.
Oooh what goes on there then!

:D