Search found 3430 matches

by JMan
Thu Apr 29, 2021 4:44 pm
Forum: The KPG Forum
Topic: Pfizer 2
Replies: 2
Views: 1044

Pfizer 2

Second Pfizer jab yesterday. Def affecting energy and mental health. I'm missing my other special 'non kidney friends', hating the garden,which usually gives me some pleasure, and generally feeling low. Don't you just love this fecking covid thing. Other news, the RSM webinars on Climate & Health ar...
by JMan
Sat Apr 10, 2021 12:51 pm
Forum: The KPG Forum
Topic: Dialysis in Holland
Replies: 2
Views: 720

Re: Dialysis in Holland

Thanks for that. Not going anywhere outside the country for a while.

But its good to get feedback:)

J
by JMan
Sun Mar 28, 2021 8:58 am
Forum: The KPG Forum
Topic: CKD - a book you found helpful?
Replies: 4
Views: 968

Re: CKD - a book you found helpful?

I'm 74 with high blood pressure, which is controlled with medication. Last year, my eGFR was 80, last week it was 58. So, I'm having further blood tests, urine test and, possibly, a scan as I have kidney stones. I understand that if CKD is confirmed, it will be my GP who will monitor me. As I under...
by JMan
Thu Mar 25, 2021 8:26 am
Forum: The KPG Forum
Topic: Dialysis in Holland
Replies: 2
Views: 720

Dialysis in Holland

Dialysis in Holland?

Has anyone dialysed in the Netherlands or on German Dutch border?

It's been a long time since I've been back to my mums home country, and its something I'd like to do. Hell, with England as it is, I'd consider emigrating if I could! LOL
by JMan
Mon Mar 01, 2021 5:00 pm
Forum: The KPG Forum
Topic: Scared
Replies: 5
Views: 1345

Re: Scared

Hi @megs There's some excellent support on here, and from the main patient charities https://www.kidneycareuk.org/get-support/ https://www.kidney.org.uk You can try and manage your BP with diet (salt is a real factor) and general health. I know with diabetes its tricky, but it will make it better if...
by JMan
Mon Mar 01, 2021 4:54 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 7049

Re: Vaccines for Covid 19

I had mine Pfizer at the beginning of March. Bit weirder and more tired than normal for a week and a tender arm. Lynn had hers on the 25th went to bed for a long snooze after lunch the same day. That was the Astra Zeneca. Continuing o shield as per the most recent letters. The variants are strong (b...
by JMan
Fri Jan 29, 2021 4:48 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 43
Views: 7049

Re: Vaccines for Covid 19

Some units are doing them 'in unit' (friends have had them) Friend. Non renal has had one and had flu like symptoms and a sore arm for a couple of days. Probably something to do with Trust decisions more than anything. Thats the issue with semi privatisation. Worth looking at the Webinars/NKF/KCUK a...
by JMan
Tue Dec 15, 2020 9:11 pm
Forum: The KPG Forum
Topic: Hey guys new member Kelly
Replies: 2
Views: 1689

Re: Hey guys new member Kelly

Hi Kelly Really sorry no ones replied to your post. Isolation is unfortunately not uncommon. Thankfully there's this site and some excellent charities such as Kidney Care UK to offer support in many ways. https://www.kidneycareuk.org/get-support/ Don't be afraid to give em a call as they offer couns...
by JMan
Sat Nov 14, 2020 1:53 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 38216

Re: Coronavirus

Got both the Gov and LA letter a few days ago. I live in a high peak area but low case 'ward'. Still scary. It suggests registering again https://www.gov.uk/coronavirus-shielding-support To be honest the 'local help' phonically were OK, my partner who has MS got nothing, and the food parcels were en...
by JMan
Sat Nov 14, 2020 11:24 am
Forum: The KPG Forum
Topic: Hope Week - RSN USA
Replies: 0
Views: 2612

Hope Week - RSN USA

This may be of interest to some. The Renal Support Network, a US patient led charity hosts Hope Week , ending today. The last webinar is on today https://www.rsnhope.org Even if your not in the USA I've found it interesting. Starts about 6 PM GMT (2PM Pacific) The last session is on Children and Par...
by JMan
Thu Sep 17, 2020 9:28 pm
Forum: The KPG Forum
Topic: Home Dialysis Webinar NKF UK patients
Replies: 0
Views: 2780

Home Dialysis Webinar NKF UK patients

Home Dialysis UK Webinar https://zoom.us/webinar/register/WN_aq-syz5ERsKFJiiLGdLZJQ I’ve just booked. National Kidney Federation Webinar: Increasing Home Dialysis in the Context of COVID-19 Wednesday 30th September 5:00 p.m. to 6:30 p.m. The National Kidney Federation (NKF) would like you to join a...
by JMan
Thu Sep 17, 2020 9:23 pm
Forum: The KPG Forum
Topic: Private messages.
Replies: 5
Views: 1868

Re: Private messages.

You should be able select a message then you get the options with a dropdown menu

Click on 'Go' then it gives an option to delete the message.

I couldn't find a way to 'select' all.

If your not getting the dropdown menu try a different browser?
by JMan
Sat Jun 13, 2020 6:26 pm
Forum: The KPG Forum
Topic: Hemodialysis - overheating/outofbreath/sickness
Replies: 4
Views: 2780

Re: Hemodialysis - overheating/outofbreath/sickness

Here we go again. Staff not fully informed/trained/or aware of dialysis side effects, can't or don't give an informed answer to patient, or give a 'fob off one'. There are many things that can give similar effects. Is the machine your on set to 'profiling' sometimes called 'sodium profiling' this is...
by JMan
Sun May 03, 2020 8:48 am
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 38216

Re: Coronavirus

Wow what a thread, haven't logged in for a while. Been instructed to self isolate with my partner from March 13th. And did get a letter from my home heamo team, Food parcels coming in, stuff we don't need we give back to the food bank so nothing wasted, and so the circle goes round. Been attaching t...
by JMan
Thu Mar 26, 2020 5:58 pm
Forum: The KPG Forum
Topic: Hospital Transport - Suddenly efficient!
Replies: 1
Views: 2466

Hospital Transport - Suddenly efficient!

A small mixed blessing reported from a friend on heamo in the unit. Now that clinics are cancelled she says she's never been in and out of the unit for dialysis so quickly!