Kidney Patient Guide

[4speed]

went in the other day for the pre-catheter indocturination and was told by the nurse that sometimes the tube can hit the end of the rectum and it will give you a tingling jolt.

have any of you had this happen....please explain

[Nicky]

Nope - I never heard that before and I've had two tenkoff catheters fitted. Never mentioned to me and never had any problems.
I'm sure you will have sufficient local that nothing in the region should hurt at all. Best of luck with the operation. I had medazalan as a sedative for mine and it really helped.
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[Adam]

When I had my PD catheter inserted, I could feel a tingling sensation in my "bits". Something to do with a nerve (can't remember the name of it) and the coiled end of the catheter touching it.

[amanda in CA]

When I started dialysis years ago before my transplant, they used to use a straight catheter and they used to make sure that the end sat in a little pouch of peritoneum called the Pouch of Douglas. That could be kind of uncomfortable at times, so if this is what is being described then it isn't painful just uncomfortable.
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[my_angel]

yea i was told of this when i had mine put in ....before i started the trainin the tube would touch a nerve inside an shoot through my pubic bone ...was much better once there was fluid in there makin the tube float ....an the nurses told me at the time that men generally get a pain in the bum lol ....
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casz

[Kipper]

I'm now nearly 4 months post transplant but back when I had my catheter put in the first time I used it at the hospital I was in agony draining out. When almost empty it would catch on the wall of my perotineum which is lined with nerves, it was absolute agony.

This continued for 3 months with me in agony 4 times a day until eventually sopmeone at the renal unit phoned Baxters who said it was a rare but known condition caused by too long a catheter being used. I was advised to leave approx 200ml of fluid in which would stop it catching. Judging the 200 ml meant weighing every exchange and as sometimes not everything that went in came out I still experienced the pain but less often, about once or twice a week.

Bad as the pain was the anticipation of it was woprse, every time I carried out an exchange I would wince wondering if was to be in agony.

I was pi**ed off cos
A - it took the hospital 3 months ( that's 360 occassions of absolute agony ) before they made a phone call to find out why.

B - the useless surgeon should have measured the catheter more accurately, still this is the NHS, no one is ever responsible for anything.

Thankfully I am now transplanted and it's behind me but if/when the T fails and I go onto PD again I'll tell the surgeon to get it right this time!

I've since spoken to a couple of people who had the same problem and they agree the pain is like nothing else on earth.